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justme15
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« on: January 06, 2013, 04:35:14 PM »

both figuratively and literally.

for all my PD friends, how do you deal with the big 'C'...constipation?  what regimens/medications/diet do you all use to keep you regular?  What is regular for you?  My clinic says no BM in 3 days; then you are constipated.  Taking this Renvela is really giving me a hard time with staying regular.  Any suggestions/advice are welcome.

Thanks!
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Joe
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« Reply #1 on: January 06, 2013, 05:54:21 PM »

I had that issue a couple of months back and we hit it with everything the team could think of; I doubled up on my MiraLax, took oral laxatives, and even used an enema. Took about 24 hours, but we got things moving.  :rofl;

Routinely, I take stool softeners and a dose of MiraLax once a day. Typically, that is all I need to keep things smooth.
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Live simply. Love generously. Care deeply. Speak kindly.
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justme15
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« Reply #2 on: January 06, 2013, 06:44:44 PM »

so how long did you go without a BM? 3 days? longer? sorry to probe into your bowel habits, but, how often do you go?
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Sydnee
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« Reply #3 on: January 06, 2013, 07:16:00 PM »

When did you start getting constipated? Ed has been on PD since August 2012. He has the opposite problem and has for years (not a dr out there that cares). Is this something he'll have to look forward to? 
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After a hard fight to not start I started dialysis 9/13
started on PD
hoping for home hemo starting to build a fistula 1/14
cause PKD diagnosed age 14

Wife to Ed (who started dialysis 1/12 and got his kidney 10/13)
Mother to Gehlan 18, Alison 16, Jonathan 12, and Evalynn 7. All still at home.
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justme15
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« Reply #4 on: January 06, 2013, 08:07:33 PM »

Ever since I started taking the renvela ( phos binder
),  Which was Sept/October
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Sydnee
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« Reply #5 on: January 06, 2013, 09:05:33 PM »

Oh, Ed has been on renvela for a year come the 19th.
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After a hard fight to not start I started dialysis 9/13
started on PD
hoping for home hemo starting to build a fistula 1/14
cause PKD diagnosed age 14

Wife to Ed (who started dialysis 1/12 and got his kidney 10/13)
Mother to Gehlan 18, Alison 16, Jonathan 12, and Evalynn 7. All still at home.
www.donate2benefit.webs.com
tiredandthirsty
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« Reply #6 on: January 07, 2013, 06:44:56 AM »

i take a dose of miralax just before i go to bed.  seems to be working decently well for me so far.  also, i am on HD not PD just fyi.  but thought i'd "share".  and i take phoslo.
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Leanne
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« Reply #7 on: January 07, 2013, 08:02:04 AM »

Im on hemo now but still have the big C issue.  The renvella does it along w keeping me queased out.  I take stool softeners every day and do miralax on the wknd if I need it.  Who knew poop would become such a huge deal but it has :(
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Leanne

I am more than a patient.  I am a mama, friend, wife, sister, and most of all a person.

41 years old, hemo since November 2011, trained for PD and tried numerous times.  PD did not work for me , it was a nightmare :(
lmunchkin
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« Reply #8 on: January 07, 2013, 09:30:56 AM »

John had this problem too.  I think it is just another symptom of the kidneys.  The binders (pyschologically) does not bind up bowels.  Thus the name binders sounds as though it does, but it clings to the phosphosforus in your body.  Really has nothing to do with the bowels. 
He kept telling the clinic it's the binders, and they would look at me a giggle, because the name "binder" you would think that caused binding up bowels.  It is highly unlikely the binders are causing this, just the digestive process that goes on within your body.  Hubby would take Dulcolox (pills) whenever he feels constipated.  It is very gentle on his body and it does releave constipation.  He would become regular again.
Ask your neph what he/she recommends for this. Dulcolox is what his recommended.

God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
justme15
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« Reply #9 on: January 07, 2013, 09:52:48 AM »

interesting, because my clinic explained that the phosphorous binder Renvela, commonly causes constipation as a side effect.  They gave me a paper that they call the 'poop protocol' with various ways to deal with constipation. Constipation can affect the draining process during PD, and  can affect the way the catheter is positioned.
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blondie1746
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« Reply #10 on: January 07, 2013, 10:10:00 AM »

I, too, was having the big "C" problem and it would make my PD very uncomfortable on the cycler.  So my Dr. recommended taking a stool softener twice a day.  Once I got into that routine, my bowels got into a routine as well.  Of course, a cup of coffee in the morning used to work on its own, but now the combination works well!  I started with Miralx, but I didn't find it worked as well, and I didn't like taking it.  Much prefer to take a quick pill.
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Willis
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« Reply #11 on: January 07, 2013, 10:10:57 AM »

Part of the problem is dehydration. The PD process pulls off a lot of fluid. I take 1 pericolace in the morning and one at night, I also take a dose of Miralax every morning. Then drink lots of water!

 
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Cordelia
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« Reply #12 on: January 07, 2013, 10:14:38 AM »

Maybe try using Senokot. I'm not on PD but suffer from constipation from time to time too.  Stool softeners never did the trick but Senokot (a laxative)works better for me anyways.
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
lmunchkin
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« Reply #13 on: January 07, 2013, 11:49:30 AM »

I never said that you would not have contipation problems on PD or Hemo for that matter.  Im saying that "the binders for phosphorus" is not the only culprit.  Clinic gave me a "poop" thingy also, but it does not say that the binders are the cause of constipation only, mine says it could be a combination of medications, that mess things up.  I take that to mean plural, not just binders.

Also, if you are eating cheese or not eating enough potassium, those could be the culprit too.  Stool softeners will definately help to regulate your digestive system.

Sorry, I guess I made it sound that binders never cause, I meant to say it is not the "singular" cause.

God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
lmunchkin
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« Reply #14 on: January 07, 2013, 11:55:40 AM »

You might try eating some High fiber foods JM15. I try to avoid giving John too many medications.  Since doing Home hemo, he doesnt seem to need all the stuff to take since no longer doing PD.  But he does have to deal with Needles! He takes a boat load of binders (Renvella & PhosLos) but he never seems to be constipated from them.  When he was on PD, yes, he had to take softners more often.

Jesus Is Lord,
lmunchkin :kickstart;
« Last Edit: January 07, 2013, 11:57:46 AM by lmunchkin » Logged

11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Whamo
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« Reply #15 on: January 07, 2013, 04:36:57 PM »

I eat pears and take DocQlace.  It works for me.
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jeannea
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« Reply #16 on: January 07, 2013, 06:38:52 PM »

PeriColace is a combo of stool softener and laxative. Taking that every day helps many people. Miralax helps some people. Also worth trying is the apple a day kind of thing. Regular fruit intake can help. You have to count fluid and potassium but I think apples are pretty good.
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Lexxtech18
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« Reply #17 on: January 07, 2013, 07:06:28 PM »

We were just talking about this in another thread...  :clap;

Miralax in apple juice used to work like a charm for me. (Key words: USED TO.)
Senakot takes awhile, but it also works.
Vegetable laxatives. Ask your neph/dietician first.
I've heard Acai berry (pill form or juice) works wonders. Again, ask first as I'm not sure how it is for dialysis pts.
Activia yogurt twice a day. Bonus! It's delicious, too.

That's all I have for now. xD
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Diagnosed with Bilateral Hypoplastic Kidney Disease - 1990
First Livinig Donor Transplant (from my mommy!) - October 3, 1996
Transplant Failed/Put on Hemodialysis - May 2005
Second Kidney Transplant (deceased donor) - July 2010
Transplant Failed/Restart In-Center Hemodialysis - February 2011
M3Riddler
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« Reply #18 on: January 07, 2013, 10:12:29 PM »

both figuratively and literally.

for all my PD friends, how do you deal with the big 'C'...constipation?  what regimens/medications/diet do you all use to keep you regular?  What is regular for you?  My clinic says no BM in 3 days; then you are constipated.  Taking this Renvela is really giving me a hard time with staying regular.  Any suggestions/advice are welcome.

Thanks!

PD in itself can cause consitpation..  Miralax works well... When I was on PD, I believe I was also on a stool softener as well.
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jeannea
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« Reply #19 on: January 08, 2013, 08:25:04 AM »

Especially the cycler can cause constipation. At night is when your bowels do their best work and keep things moving. But on the cycler you are drawing water out at night. You're basically fighting your body's natural process. That's why constipation is such a problem. The best way is to be proactive. Take your stool softeners and/or laxatives. Keep track of how long it's been since you had a bowel movement. Then you can work on things before you're 5 or 6 days constipated when you're going to hate life.
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