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Author Topic: Hello, I really like the concept of your website!  (Read 3794 times)
zekewolfy
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« on: December 23, 2006, 08:17:38 PM »
Hi folks, my name is Mike and I am 39 years old. I have been on hemo dialysis for almost 2 years now. The doctors are not sure what caused my only kidney to fail. All I know about dialysis is.......

I HATE IT!
I HATE IT!
I HATE IT!

I Hate DUHVITA(I dialyze there)
I Hate that we cant have any food or drink in my clinic(ridiculous!..The morons have an ant problem they cant get rid of)
I Hate that when I tell my doctor "my treatment is killing me" and it does not register..If he could, he would say:
JUST SHUT UP AND SIT IN THE CHAIR AND MAKE US AS MUCH MONEY AS POSSIBLE!

I Hate being sick after a Hemo treatment
I Hate being called "UNCOMPLIENT" if I get too sick and have to cut the treatment short
I Hate having to explain this to my parents, who live in MA, I live in NC..they even refuse to go to a clinic to understand dialysis

I Hate what this has done to my poor wife
I Hate that I feel that my life is destroyed(It really isnt...just venting!!)

I had a stint where I tried PD, but the fluid would not come off and I developed congestive heart failure.
Stack this on top of Guillian Barre,Diabetes, and nueoprathy and its been a pretty unreal year!

Its great to find a site where the people have the same problems as me! I'll tell you, some days I just don't know!!!
I feel like just quitting this, as I don't see how I can do this for the rest of my life.
Luckily I have a loving wife that means the world to me and keeps me going!!!!!

I still work full time as a software engineer(I don't know how somtimes!) and dialyze on T/T/S. This six day schedule is hell and is getting the better of me, I am trying to move toward Home Hemo in early 2007.

Thanks for listening to the rant!
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Sluff
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« Reply #1 on: December 23, 2006, 08:28:46 PM »
You are going to fit right in around here! Welcome zekewolfy to IHD.
It's great to have you here. Take your time and look around, maybe we'll see you in the chatroom one of these days.
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paris
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« Reply #2 on: December 23, 2006, 08:40:08 PM »
Welcome Zekewolfy --we have two things in common---------I have a 5 yr old grandson named "Zeke" (Ezekiel) and I live in NC.  Software engineer -- are you in the RTP area???  Nice to meet you.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
mcjane
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« Reply #3 on: December 23, 2006, 08:43:46 PM »
 A great big :welcomesign;  zeke
Nice post.

There is not a soul here that does not know or understand what your going through.
Patients know, caretakers understand.

You found the best place on the Internet to speak out about exactly how you feel.
Your gonna love it here.

I'm a caretaker, husband on dialysis. I thought dialysis was going to make my husband feel as good as new, but it's, it's own kind of Hell on Earth.

Your among friends so stay & keep posting & rant all you like.
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #4 on: December 23, 2006, 09:19:16 PM »
Zekewolfy, welcome to our community!  This website was specifically created for people like you!  Epoman is going to love your rant!  Take your time and explore all that we have to offer.  Check out Nxstage (www.ilovenxstage.com) if it is available in your area.  Feel free to post, ask questions, answer some, chat, play games.
I am looking forward to hearing much more from you.
Welcome again  :grouphug;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Epoman
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Want to help out? Become a Premium Member today

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« Reply #5 on: December 23, 2006, 09:40:24 PM »
Welcome to IHD, I think you are going to like it here. Besure to check out these threads:

http://ihatedialysis.com/forum/index.php?topic=540.0

http://ihatedialysis.com/forum/index.php?topic=584.0

And read the threads in this section:

http://ihatedialysis.com/forum/index.php?board=34.0

I love how you call it Duh-Vita like I do, and if you become a "Premium Member" just $5 a month (your money helps pay for the site and keeps it online). If you do you will have access to even more of IHD and also access to some videos from Duhvitas Annual Convention. Believe me, you won't BELIEVE your eyes.
Again welcome to the site and since you are interested in home dialysis, be sure to check our sister-site http://www.ilovenxstage.com

- Epoman
Owner/Admin
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- Epoman
Owner/Administrator
13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
goofynina
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He is the love of my life......
« Reply #6 on: December 24, 2006, 12:19:33 AM »
Ohhh Zekewolfy, your gonna love it here,  best support group you will ever find  :2thumbsup;  Very good intro,   Your wife is welcomed here as well, we have some awesome people here that are married to dialysis patients and we also have a special thread just for them.  Please feel free to look around and if you have any questions, comments and/or concerns of your own, by all means post away my friend...  One more thing,   remember, you are not alone,  especially now, you have US ;)   :grouphug;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Joe Paul
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« Reply #7 on: December 24, 2006, 01:08:40 AM »
Welcome Zekewolfy, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Zach
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"Still crazy after all these years."
« Reply #8 on: December 25, 2006, 08:54:27 PM »
 :beer1;
Welcome to the community!
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Black
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« Reply #9 on: December 25, 2006, 10:06:09 PM »
:welcomesign;  Good intro -- you're gonna fit right in!  ;D

The suggestion to check out NxStage is good -- go to     nxstage.com   as well.
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
st789
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« Reply #10 on: December 26, 2006, 04:44:02 AM »
WELCOME ZEKEWOLFY TO THIS SITE, I AM ALSO A RECENT NEW MEMBER MYSELF.  YOU WILL GET TO KNOW MANY WONDERFUL AND FRIENDLY PEOPLE HERE.
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nextnoel
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« Reply #11 on: December 26, 2006, 06:16:25 AM »
Zekewolfy, glad to have you here!  :welcomesign;  You sound like my kind of person - very straightforward and confident.  Good intro!  I look forward to hearing more from you. :welcomesign;
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I can't reach the hill like I used to, but I'm not at a standstill yet!
boxman55
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« Reply #12 on: December 26, 2006, 07:42:12 AM »
welcome I am a recent beginner also started Hemo in August. I work full time and go to Dialysis MWF it can get very tiring but, hang in there and stay in touch Peace Brother
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
mallory
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« Reply #13 on: January 03, 2007, 11:08:35 AM »
Zekewolfy, you're going to fit right in!  Welcome to the site! :welcomesign;
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
girl-x-treme
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girl-x-treme
« Reply #14 on: February 23, 2007, 12:00:50 PM »
let me know how your home hemo turns out, Im trying to find a way to take mine backpacking, check me out
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BigSky
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« Reply #15 on: February 23, 2007, 12:57:14 PM »
 :welcomesign;
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angieskidney
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« Reply #16 on: February 23, 2007, 01:58:07 PM »
lol you really fit in here! I think Epoman will love you since you both share the same views about Hemodialysis and DuVita ;)  :welcomesign;
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
billoggblog
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You Dialyse to Live....You Don't live to Dialyse!
« Reply #17 on: February 23, 2007, 02:09:59 PM »
And I thought the NHS (UK) was Bad!!!!!!!!!!!!!,anyway  :welcomesign; Zekewolfy
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Yesterday is History..........Tomorrow is Mystery..........
Today is a Gift...That's why they call it Present.
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