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Author Topic: hi my name is maria and i was on dialysis  (Read 4052 times)
husi64
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« on: February 23, 2007, 10:51:41 PM »
hi,my name is maria and i was diagnosed with FSGS when i was 15.In 2002 my kidneys finally packed it in and i started hemo at home in june,unfortunately in the same year i was also diagnosed with a condition called Benign Intercranial Hypertension which is when fluid leaks from the brain and has nowhere to go.A shunt was placed from the brain,down the spine and drains out to the peritoneal,so i had no choice but to do hemo,and because of the pressure caused by the fluid i lost the vision in my right eye which made canulating a little hard as my fistula was put in my right arm and i am right handed.But i learned to cope (i had no other choice did i ?)On feb 26th 2004 i got that wonderful phone call and had a transplant.I was a lucky one as i was only on the waiting list for 18 months.So far i have had a few hiccups along the way but am doing well (just need to lose  the kilos from the steroids)Anyway i am 42 years young and have 3 children.2 are my stepchildren whom i love just as much as my own.They are 26,21 and 10.I have a very supportive husband and wonderful sister who you all know as babi68,so you would all know my family history already.my user name is husi64 and my son is bradley who often plays arcade as he is trying to beat his cousins scores.I live in Campbelltown near Sydney aussie.Well i have waffled long enough,hope i did everything the right way,talk again soon .
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anja
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« Reply #1 on: February 23, 2007, 10:55:02 PM »
 :welcomesign;  husi64, to this great site!
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Wattle
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« Reply #2 on: February 23, 2007, 11:07:29 PM »
       


      :waving;  Hi Husi64,  Yeah another Aussie! Welcome and congratulations on your transplant!
                    It gives me hope when I hear of someone getting that call so quickly!   :clap;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
kelliOR
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« Reply #3 on: February 23, 2007, 11:27:12 PM »
Hello husi64!

Wow, you've had quite a bit thrown at you!  Congrats on your txp.!   Glad you're here.

Kelli
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........


Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
angieskidney
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« Reply #4 on: February 23, 2007, 11:50:07 PM »
 :welcomesign;

You have been through a lot and young too!
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
shay_pcb
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« Reply #5 on: February 24, 2007, 12:10:48 AM »
 :welcomesign;
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aharris2
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Volcan Pacaya, Guatemala
« Reply #6 on: February 24, 2007, 12:35:26 AM »
welcome husi from Aussie, hope you like it here.

Rolando
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Joe Paul
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« Reply #7 on: February 24, 2007, 01:17:40 AM »
Welcome husi, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
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Sluff
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« Reply #8 on: February 24, 2007, 02:50:35 AM »
Hello maria,

Welcome to IHD. Another FSGS'er.I'm so glad you found us, there is a lot of information here and it will take awhile to digest everything, but that is why we are here.

IHD is the best source on the web for dialysis related information because we are a patient driven and owned website. Basically you will read true life experiences instead of the Doctor or clinics point of view.

Our members will be brutally honest and open when needed, they will tell you their experiences and what what they have done to cope. I'm glad your family is supportive.


Sluff, Moderator
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charee
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« Reply #9 on: February 24, 2007, 02:56:43 AM »
 :welcomesign; Great to see another Aussie here hope to hear more from you..

Cheers
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
billoggblog
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You Dialyse to Live....You Don't live to Dialyse!
« Reply #10 on: February 24, 2007, 05:42:48 AM »
Hi Ya!!  :welcomesign; to the club!
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Yesterday is History..........Tomorrow is Mystery..........
Today is a Gift...That's why they call it Present.
del
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del and willowtreewren meet
« Reply #11 on: February 24, 2007, 06:54:54 AM »
 :welcomesign; Good to have you here.
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« Reply #12 on: February 24, 2007, 12:08:56 PM »
Hi Maria, husi64.  Welcome to our community.  It is really welcome to our family, because that is what IHD has become.  We are so glad to have you with us.  Please take some time and give us your perspective on your transplant experience.  We have a section for transplant stories and we would like to have yours.  We have about five of our members who had transplants in the last month or two.  As you probably know, there is lots going on at this site.  Just take advantage of all of it - it's for you!

Bajanne, Moderator

A special welcome from one also born under the Union Jack (Caribbean).
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Rerun
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Going through life tied to a chair!
« Reply #13 on: February 24, 2007, 02:52:58 PM »
Hello Hussi64 and welcome to IHD.  We just all love Bab68 and miss her posts since she has her plate full right now. 

I see you know about the Arcade.  What a great place to lose your self and 3 or 4 hours.  I get hooked on Bubble Shoot myself! 

Please go to Transplant Stories and tell us about your call and everything that happened. 


Rerun, Moderator
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Babi68sBaby
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..::total avatard for lyff::..
« Reply #14 on: February 24, 2007, 08:56:42 PM »
 :welcomesign; Woo! ;D Hello there Aunty Maria. Lovely to see you on the site. Make sure to let Brad know that I'll still be contesting for his scores!!!!!  :P
Much love
Amy xoxo
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nextnoel
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« Reply #15 on: February 26, 2007, 10:09:21 AM »
Welcome, husi64 - sorry for your troubles, but glad to have you with us!  :welcomesign;
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I can't reach the hill like I used to, but I'm not at a standstill yet!
babi68
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« Reply #16 on: February 28, 2007, 02:41:26 PM »
:welcomesign; hi there sis, finally you have joined up. everyone is really nice here and you will enjoy reading everyones posts. good luck with knocking me off the high scores. As you know I really don't have much time for the games right now, so keep on trying. We will see you on the weekend. Remember we are taking photos on the weekend to post here so everyone can see what you look like. Luv ya. Babi :clap;
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Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #17 on: March 02, 2007, 04:41:41 AM »
 :welcomesign;
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Ken
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« Reply #18 on: March 03, 2007, 02:17:55 PM »
 :welcomesign;
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jedimaster
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Stainboy is....alive!!!
« Reply #19 on: March 03, 2007, 07:29:06 PM »
 :welcomesign;
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kitkatz
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« Reply #20 on: March 03, 2007, 07:33:37 PM »
Welcome to the site.  :clap;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Zach
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« Reply #21 on: March 04, 2007, 10:44:06 AM »
Good to have you with us!     ;)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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