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Author Topic: I'm active on the transplant list!  (Read 1556 times)
MomoMcSleepy
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My son Roddy McSleepy at 6 months! sry pic sidewz
« on: November 13, 2012, 07:19:45 AM »
I got medical clearance on Oct. 30th!    Woot!  Kept meaning to post, but my touchpad wasn't charging.  I'm using my cell phone cord for it, charges v e r y    s l o w l y.

Fresh catheter every time took care of my infection problem.  I blew through my health care fund through work, though, buying the new caths.  Now it's hard to afford Iron supplements, but at least insurance pays finally (cause I couldn't afford the catheters anymore).

 Tomorrow, my husband is getting evaluated as a donor.  All day appointment at the hospital.

Oh, and, my brother doesn't match me, but volunteered for paired donation.  His Evaluation is the 21st.  Sadly, I can't go with him, it's the day before t-giving, and everyone already took off from work.

my gfr is 13, still not on the D, but feeling kinda slow and like my muscles are tired, or not breathing.  I have been cleaning and entertaining  like a demon lately,  trying to tell my husband I  need rest. He gets frustrated with how quickly I  get fatigued.  I worked OT this weekend, and only got three hours sleep.  I have still not bounced back from it, and have a really full week this week.  So tired!  I need a break, really!
« Last Edit: November 13, 2012, 08:19:45 AM by MomoMcSleepy » Logged
35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
lainiepop
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« Reply #1 on: November 13, 2012, 07:56:33 AM »
Yay great news!

Hoping your hubby will be approved as donor and maybe you can avoid dialysis and get  a pre emptive tx. My gfr was 10 for 9 mths and i was ok off it,

thinking of you X x
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
MomoMcSleepy
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My son Roddy McSleepy at 6 months! sry pic sidewz
« Reply #2 on: November 13, 2012, 08:18:09 AM »
Thanks for the encouragement, lanie!
 :2thumbsup;
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
MaryJoe
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« Reply #3 on: November 14, 2012, 09:28:28 AM »
 :yahoo;  Momo - that's stupendous news!  I hope your husband is a match and your wait is over soon.  How cool is your brother, volunteering for a paired exchange!  Tell them both they are my new heroes!

P.S. Great news about your infection problem clearing up also.   :2thumbsup;
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
MooseMom
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« Reply #4 on: November 14, 2012, 09:58:58 AM »
That's great news, but do try not to work too hard leading up to T-giving.  Make your hubby help you out!!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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