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Author Topic: Hi. My name is Katie.  (Read 2999 times)
katieking1981
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« on: November 08, 2012, 06:14:00 PM »
My boyfriend John is a home hemo patient. I joined this board last year, but I hadn't posted until recently. Ive been in need of a support system and it looks like I found one   ;D.

His story is a little longer then mine. He is 33 and was both with biliary hyperplasia. He was a really sick kid until he got a liver transplant at 13. Then he was great for years until doctors discovered he had a toxicity to cyclosporine and his kidneys were failing. At 27 his dad gave him a kidney.

We were friends for 6 years. Then started dating almost 2 years ago right after my divorce. Shortly after we began dating,  we discovered that I was pregnant. (I also have an 8 year old daughter.) 9 weeks into my pregnancy, John became very sick and his kidney suddenly rejected. That was October 2011.

He needed do start dialysis for the 1st time in his life. We moved to home hemo in April. I gave birth to our son in May. Life is hectic with both of us working full time, 2 kids, and dialysis. I'm starting to hate dialysis even though I love that it keeps John alive.
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Married to John (1 liver & 2 kidney transplants) currently on hemo dialysis. Full time working mom to Ayla 13, Carter 5 and Theo 2. Plus our 2 crazy pit bulls.
MooseMom
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« Reply #1 on: November 08, 2012, 06:30:44 PM »
I remember your other post where you talked more about the demands of his dialysis, your job, his job AND kids!  Your attitude toward dialysis (home hemo, right?) is pretty common...a love/hate sort of thing.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
katieking1981
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« Reply #2 on: November 08, 2012, 06:43:28 PM »
Yes, definately a love hate thing. But I'm really so happy to have a place where its ok to say that and have people understand.
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Married to John (1 liver & 2 kidney transplants) currently on hemo dialysis. Full time working mom to Ayla 13, Carter 5 and Theo 2. Plus our 2 crazy pit bulls.
MooseMom
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« Reply #3 on: November 08, 2012, 06:48:15 PM »
Oh yeah, we understand.  No one LOVES dialysis.  We may love having it as a choice, but no one loves actually doing it.  I don't know anyone who thinks, "Oh boy!  Now I get to dialyze!  It doesn't get any better than this!  Yay!  I love labs, too!"
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Grumpy-1
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Make me the person my dog thinks I am
« Reply #4 on: November 09, 2012, 06:02:31 AM »
got to love LABS - I'm a hard stick and the norm for me is at least 3 tries.  Got to love LABS...    :clap;  Grumpy
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Make me the person my dog thinks I am
looneytunes
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« Reply #5 on: November 09, 2012, 07:03:38 PM »
Hi Katie and glad to see you post.  We all hate dialysis but hate the alternative worse.  You certainly have your hands full with 2 kids, a job and a home hemo patient.  Hats off to you for being willing to walk this path with your bf.   :grouphug;
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"The key to being patient is having something to do in the meantime" AU
Rerun
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« Reply #6 on: November 09, 2012, 07:27:48 PM »
Hi Katie, I'm glad you are posting.  It is good to talk about your feelings.  It would be good for John to come on here too. 

Stay tuned to IHD.

Rerun, Moderator     :welcomesign;
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lmunchkin
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« Reply #7 on: November 13, 2012, 05:04:40 PM »
Welcome Katie.  So glad you joined us.  Good place for support!  We are all in this together.

Again welcome & God Bless you for your support of your BF with children on top of all that, is quite a bit to carry. Thank God he has you.

lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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