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Author Topic: I Hate Dialysis  (Read 3100 times)
Mike Maloney
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« on: September 25, 2012, 07:11:05 PM »

I am 58 years old.  I have been on dialysis since January.  Am doing home hemo with my wife now for about 3 or 4 months.  Home hemo make it a little better, but I just hate having to use up 4 or so hours 5 days a week.  I am on the transplant list.  Hope to get a kidney soon, but they say the wait for someone in my category is 3 to 5 years.
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MommyChick
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Me & my precious Miracle !!!

« Reply #1 on: September 25, 2012, 07:15:21 PM »

Hi Mike &  :welcomesign;

Hope you find this web site helpful for your journey!
Good Luck & God Bless!
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~ Hello All, My names Marna ~

- 1995 - 12 yrs old found out my kidneys were both failing
- 1996 - Dec. 3 I received my 1st kidney transplant at age 13, after 7/mths on the waiting list
- 2005 - In Aug. transplant failed after 9.5 years, had to have a nephrectomy due to being very ill & massive hypertension
           - End of Aug. 1st time on dialysis
- 2006 - Had my fistula placed & ready to go
- 2010 - My little Miracle was born 6/mths into the pregnancy, weighing 2.4 lbs & 13.25 in long
          - Found out my PRA is 100% & I have antibodies that CAN'T be decreased
- 2013 - Oct. 2nd  *** I finally received my kidney!!! ***
          - Dec. 3rd I had 3.5 parathyroids removed, due to them interfering w/my new kidney.
MightyMike
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Why do bad things always happen to good people?

« Reply #2 on: September 26, 2012, 03:57:16 AM »

 :welcomesign; Mike
I hope a kidney turns up for you soon.
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"The greatest pleasure in life is doing what people say you cannot do."
   -Walter Bagehot
==========================
December 2003 diagnosed with IgA Nephropathy 80% Function.
October 2004 started In-Center Hemo Dialysis Perma-Cath 5% Function.
September 2005 Living Related Donor (Mother) Transplant.
March 2009 Diagnosed CKD and IgA Nephropathy.
August 2009 Upper Left Arm Fistula.
November 2009 started In-Center Hemo Dialysis.
December 2010 started Home Hemo Dialysis.
January 2012 went back to In-Center Hemo Dialysis.
chinksnicky
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« Reply #3 on: September 27, 2012, 05:58:21 AM »

Welcome Mike,be very thankful you have your wife to help you on this journey,many of us have to face this alone.Good Luck,Nick
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lmunchkin
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"There Is No Place Like Home!"

« Reply #4 on: October 01, 2012, 07:54:30 PM »

Welcome Mike.  It is so great that you are doing Home hemo and with an Angel by your side all the way!  Are you doing NxStage?

Again welcome & God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
marje
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Nocturnal home hemodialysis

« Reply #5 on: October 21, 2012, 10:28:13 AM »

I hate dialysis but if you have to dialyse - home nocturnal hemodialysis is definitely the way to go.   When doing 3 day a week hemodialysis in centre I always felt knackered afterwards.   I quickly learned how to set up my machine and needle myself and after a few weeks in centre got my machine at home.  Did 5 days a week for 2 1/2 hours each day at a time that suited me but found out about nocturnal dialysis and my hospital, being very keen to help patients, taught me about nocturnal hemodialysis.   I have been doing the single needle for nine months now and will hopefully be continuing nocturnal on two needles until I get another transplant (always look on the bright side of life!).

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Marje
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When all else fails run in circles, shout loudly

« Reply #6 on: October 21, 2012, 02:19:44 PM »

Welcome to the site Mike

take care Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
justme15
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« Reply #7 on: October 21, 2012, 02:38:28 PM »

I am 58 years old.  I have been on dialysis since January.  Am doing home hemo with my wife now for about 3 or 4 months.  Home hemo make it a little better, but I just hate having to use up 4 or so hours 5 days a week.  I am on the transplant list.  Hope to get a kidney soon, but they say the wait for someone in my category is 3 to 5 years.

Hi Mike, Welcome to IHD! This site has a ton of useful information and great people!
I was wondering, you said the wait  for someone in your category is 3-5 years.  What is your category?
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