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Topic: Hello (Read 2342 times)
juju75
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Hello
«
on:
October 10, 2012, 03:37:54 PM »
Hi there
My partner of 17 years is about to start home peritoneal dialysis.
We are keen travellers and have done a bit of travelling so far, but it was our intention to do a lot more! He will go on the waiting list for a donated kidney as soon as the dialysis starts and I am hoping we can start to travel again (obviously within reason)!!
I look forward to getting to know some of you in similar situations on this forum.
JuJu75
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Mr Pink
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Re: Hello
«
Reply #1 on:
October 10, 2012, 03:56:21 PM »
Hi there. I too am a keen traveller. I've covered most of Europe, south-east Asia and bits of the Middle East. Dialysis has put the brakes on for now. I'm going to give myself some time to enjoy life at home for a while whilst getting used to life on the big D. I hope to do a little travelling whist on dialysis, to New Zealand and possibly the Philippines, and maybe Canada at a stretch. There is no reason why you can't either. Time is on our side! Welcome to the site. Good luck with everything.
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MaryD
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Re: Hello
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Reply #2 on:
October 10, 2012, 04:12:23 PM »
Welcome, Juju.
PD is a good choice for travelling. It's quite portable, although I haven't tried travelling with it yet.
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Rerun
Member for Life
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Going through life tied to a chair!
Re: Hello
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Reply #3 on:
October 10, 2012, 04:53:31 PM »
Hi JuJu, he can get on the waiting list before dialysis starts. Don't let them feed you that BS. Go in there and get the workup done.
Thanks for joining.
Rerun, Moderator
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Sydnee
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Re: Hello
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Reply #4 on:
October 10, 2012, 05:18:32 PM »
Hello,
I agree with rerun get on the wait list now. Ed and I got on the list about a year ago, both of us were pre-dialysis at the time. Our hospital has a 6 year wait list.
I think of the choices PD will work well for you two.
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After a hard fight to not start I started dialysis 9/13
started on PD
hoping for home hemo starting to build a fistula 1/14
cause PKD diagnosed age 14
Wife to Ed (who started dialysis 1/12 and got his kidney 10/13)
Mother to Gehlan 18, Alison 16, Jonathan 12, and Evalynn 7. All still at home.
www.donate2benefit.webs.com
juju75
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Re: Hello
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Reply #5 on:
October 10, 2012, 07:59:04 PM »
Wow - Thanks for your replies, I feel very welcome!!!
Mr Pink - When you make it to the Philippines I would love to hear about it (or any of the other destinations you mentioned for that matter).
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Grumpy-1
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Make me the person my dog thinks I am
Re: Hello
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Reply #6 on:
October 11, 2012, 04:00:32 AM »
Juju75 I'm on PD (almost 3 years) and do a lot of traveling. I'm a biker and take 2 day weekend trips as much as I can. I also travel for work and play (week + trips) It isn't a problem when doing PD. Just needs a bit of planning. For the longer trips I will have the supplies sent to the hotel where I'll be staying. So far no hotels have had any issues with that. You don't say what type of PD he will be on. Using a cycler or just manuals. I do both. Will take the cycler with me on longer trips but have done all manuals at times too. But doing manuals in the middle of the night is a pain - just get to sleep and you are back up again doing another exchange. Don't let PD stop you guys from traveling. Just remember it take a bit more planning ahead of time to get it done. Grumpy
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Make me the person my dog thinks I am
Sue
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Re: Hello
«
Reply #7 on:
October 11, 2012, 06:20:55 AM »
Hi JuJu
I am also in Australia, in Perth, where abouts are you ? Welcome to IHD.
Rerun, as far as I know we in Australia can't get on the list until we have started dialysis
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
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