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Author Topic: My fistula arm is so swollen  (Read 4016 times)
gothiclovemonkey
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« on: August 04, 2012, 11:50:11 PM »

IDK what is going on, and the doctor cant get me in until late aug. Im wondering if anyone else has experienced this?
My nurse at d has said if it gets worse to just go to the er, but im hoping to not have to do that lol

for a while now, off and on, my arm has become slightly swollen. Not a big deal, because it wasnt really effecting anything.
THis week, however, it has swollen much bigger, it is physically uncomfortable and has began hurting. i can barely close my hand or bend my arm. The other day, d was so unbearable i had to come off early.

there isnt any unusual bruising, just a tiny bit near where they poke me, nothing abnormal there. just swollen from shoulder to fingertips.

anyone?
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
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monrein
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Might as well smile

« Reply #1 on: August 05, 2012, 04:58:57 AM »

As much as the ER is horrible, fistula complications are worse.  Deep vein thrombosis, clots deep down, can cause pain and swelling and are very serious.  I personally wouldn't wait for this to be checked properly with some kind of imaging to see what's happening inside the arm.  Inconvenient yes, but some inconveniences are bigger than others.  Good luck Jen.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
amanda100wilson
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« Reply #2 on: August 05, 2012, 07:30:06 AM »

I second Monrein
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
cdwbrooklyn
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Positive Thoughts equal Positive Energy

« Reply #3 on: August 06, 2012, 02:20:13 PM »

It can be that the person who's putting in your needles is going too deep.  This what can make your arm swollen.  I would see the doctor and tell whoever doing your needles do not sick you too deep.
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
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