QUESTION FOR THE LADIES

[sarahmanda]

I feel like I still have a pretty normal sex drive, only problem is its still higher than my bf's. As far as Aunt Flo is concerned, the past two years have been the most frustrating of my life!!! Even before I started D, I became irregular, and what I thought was a pregnancy scare ended up just being my kidneys failing, YAY (NOT)!!! But since I started D it has been the most sporadic thing ever. In the beginning, I'd be on for about 4 days then off for 6 weeks, then on 4 days, off 8 weeks, then it was more like on 8 days, off 3 weeks, and over the last two months its been on 1 day, off 5 days, on 2 days, off 2 weeks, on 1 day, off 9 days, etc., etc., etc. (The time I was off for 3 1/2 months was the best EVER!!!) I never know when its coming and when it will end, which has caused some embarrassment a couple of times. My dr said no bc for me because of the ESRD and my high BP....it sucks monkey toes!

[jbeany]

No birth control or no birth control pills?  There are other options.  Check into a Mirena IUD, which is so low dose even diabetics are allowed to use it.  Also, if you decide not to have children, the ESRD makes it easy to get coverage for more permanent solutions, like tubals and ablations.  (No period again with an ablation, bonus.)

Also, which doc said that?  Nephs are lousy to ask about birth control - they rarely are updated on what's out there that is suitable for D patients, since so few of us are still young and fertile.

[lainiepop]

I had none for a While when gfr Was 8 to 10 (i wasn't on D) I'm now almost 7 wks post tx with good function & last couple wks have been thinking bout sex quite a bit & hubby was pretty happy last night when i decided wanted to do more than just think about it loI! So for me i think the low function & low iron Was affecting libido now things are settled & normal it Seems to have returned!

My periods stopped Feb this yr (I was glad as bled for 9 wks heavily after my daughter was born in July ) hormones were screwed from birth & gfr drop had to go On pill to sort it out then came off it in Feb bled for 2wks then stopped yay! Asked my neph last wk when i'd get periods back & she Said even tho my hb has gone up to 11.6 it could take mths. I'm not bothered, don't want any more children so Why do i want to bleed lol!

[peaches94]

 :shy;I am so glad someone ask this ? i have the same problem n when i mentioned it to my dr it was just ignored as usual. At least i know now that im not alone. My husband is understanding to a certian point but i know it bothers him more than he wants to addmitt. He make coments sometimes like "do u not "want" me anymore" and thinks that its him even tho i tell him repeatedly its me. I feel horrible that i dont want to do it any more i use to be pretty active wen it came ot sex. Now i feel like it is such a chore. I dont sleep well due to itching, cramping, head aches, just being to tired, u know all the lovely things that go along with CKD and wen i do sleep i dont want to be bothered. When it comes to periods i have one bout every 3 monts or so and most the time i feel like im being hit repeatedly by a mac truck.

[Grumpy-1]

Sorry for jumping in on the Ladies question, but I find it interesting that some of you indicate your BF or Hubby's sex drive is less than yours.  I thought all men were horny all the time.      In my case, I'm the one on D, but still have more sex drive than my wife.  BUT my problem is now that I enjoy erectile disfunction.   But I still can provide some pleasure by other means.  Grumpy

[MommyChick]

I don't want my period anymore but I'm afraid to have any kind of surgery that may screw up a transplant. I'm wondering if maybe anti rejection meds will make it disappear? (I really don't know, but I'm hoping it will cause it to stop)     so I'm holding off to see what happens when/if/once I have a transplant.

After I had my son it was horrible it got that bad, but I had a DNC done & that worked wonders!! I am still on the waiting list & it didn't hurt my chances or take me off the list to have the procedure done.

[lainiepop]

well So much for it taking at least 6mths post tx for periods to come back, 9 wks yesterday & it comes! Grrr lol!

[bleija]

ha ha  im 3 weeks, and got mine right on time as always

[lainiepop]

lol. I hadn t had one for 3mths before  tx tho, sucks!

[bleija]

not having one sucks? i am inclined to dfisagree, since i first got mine i have never been free from one ever, every month right on time and one month i get 2, oh joy, would be glad to sharelol

[lainiepop]

No i meant it sucks having it after not for a while! Only time before i never had It was when pregnant with my son & daughter & seeing as don't want Anymore Kids didn't really want a period back Iol!

[bleija]

oh ok then yes i agree, that would suck, but in a way it shows ur body thinks its healthy again lol, i joked with the swurgen when they asked us what kind of birth control or contraception, and we r like dont have to have sex for that to be an issue lol, nah but he told us pretty much ur body is like were healthy again so lets make babies!!! lol

[lainiepop]

lol! they talked to me bout contraception as they were surprised I conceived my daughter so would bereally fertile after transplant, i told them no prob hubby had snip in March haha ! (think he was worried i'd get ideas bout More after tx!) What bout you would you like kids now you've had tx?!

[bleija]

we definitely do, my hubby is mexican so u know their biological clocks start ticking at 12, lol and hes 25. they told us we could but just to wait a full year after everything is settled. i would like 2, but im gonna tread water with the first one and see how everything goes before i decide whether or not i should go for a second.

[lainiepop]

lol! Am i right you're only 22 anyway So got plenty of time! You must've been young when you got married, we were 23. I was 25 when I had Andrew & 29 when i had Elena. I'm 3o now & so done lol ! Do you have to wait  a yr post tx before you try for a baby? x

[bleija]

a year is what the transplant docs told us. and yeah we were young, well i was 19, he was 23.it was a few months before i turned 20. but when i found out about all my issues, he was the first person i felt i could talkk to and vent with, and he took care of me after my surgeries and did things i couldnt do around my apartment before we were technically dating or anything. i know we were young but it felt right and couldnt imagine going through any of this stuff without him.
i know we have plenty of time im not in any rush, would ratherr have kiddies when my kidney is at full stregth tho, so it can manage the extra stress better, but ultimately i will wait for the doctors to give me the clear

[lainiepop]

yes a years what i've heard too, although im not allowed anymore lol! Hubby says no & dad Wouldn't be happy after giving me his Kidney haha!
So glad you have a supportive hubby, mine is too, he started to be tested to donate to me got as far as finding out blood group (same as mine !) before told my parents Would be better.
How you feeling now? x

[bleija]

my hubby wanted to originally but we kinda decided against it, bc he is my primary support system at home, and i didnt want to burden anyone with having to take me back and forth. and not that he would have been able to now, we found out last year that he has type 2 diabetes and started taking blood presssure medication

[bleija]

my goal though for this year that i have before we get the clear, is for both of us to get healthier. we are already eating healthier. i never wanted to exercise or anything pre transplant bc i was exhausted all the time but now that im feeling better i have more energey and would like to lose 30 lbs or 40 lol. My hubbys goal is a lot higher he wants to lose 100 lbs. the dr pretty muh told him he could reverse the diabetes if he lost weight and that would fix his blood pressure issues. i just wanted himto lose 50, but i will wupport him to lose it all

[lainiepop]

Ah well good luck with the weight loss hope it helps hubbys diabetes. Im the opposite always been tiny & lost weight in hospital So am trying to gain which is great now can eat what i want! Have gained 12lbs want to gain another 6 or 7 then wanna start some Sort of exercise regime!

[bleija]

with this prednisone all i wanna do is ewat eat and eat, so yeah, it is so much harder now that we can eat what we want, and that everything tastes sooo good!! lol

[lainiepop]

lol i did at first too not so much since my pred has been reduced from 20mg to 5. How much are you on? they're reducing mine to 4mg in a couple wks When i hit 3mths post tx then 3mg, 2 & l then they'll take me off it completely cause im young they Said they don't want me on it permanently if alls going well!

[bleija]

that would be awesome to not have to take any at all, that tastes soo bad. i am on 20mg now, they have been lowering me by 5mg at a shot. i am 26 days post. the second day they gave me 90mg, then the 3rd day 60, 4th day 30, kept me at thirty for a week or so then down to 25mg, then thurs they took me down to 20.

[lainiepop]

Oh i havent noticed the taste really. I was on 20 post op then 15 then 10 then 7.5 etc. Im also on tacro 3.5mg morn and night which i think they'll reduce at some point and another one i cant spell something mofetil 750mg twice a day. They say the tacro and mofetil should be enough for me to come off the steroids. How often are u having labs and clinic apps at mo? Hows your donor doing? x

[bleija]

my donor is doing great, the docs can hardly beleive that our surgery was less than 4 weeks ago. i have prograf 4 in the morn and 3 at night, cellcept 1000mg morn and night, oh get one stuck in ur throat, oh its soo bad, and it seems so hard to get rid of the taste