thanks moosemom. I'm just finding it tough at the moment, I feel pretty weak & Stressed & tired, its fustrating as I felt better on a GF R of 10 & now I have the best function I've ever had in my life Why aren't I bouncing off the walls ?! I guess I have to give myself time to recover & get over this infection but i'm inpatient to be normal ag ain for the kids x
First of all - in your original post I think you wrote that your cr went from 79 to 105 - honestly, can I tell you this? this is nothing. Now yes, you had an infection it seems, and that was smartly taken care of and that's fantastic.. but I'll tell you one of the biggest things I had to overcome post tx was those bloody numbers! Mine would go up by 10 and I'd think the sky was falling. In reality it isn't. Wow, if you had my lab report as yours you may do a head spin or something. Last report it was 128. I'm very happy with that - for me that's stable. To be around 100, and less is freaking awesome. "Normal" (as in good kidneys) range for cr is something like 60-105, so even then you were in mega normal. I know a patient who sits on 180 and is stable, someone else I heard of was 220 for years - 18 i think I heard. Everyone has their levels.. mine can bounce around and we've decided that a range of 20-30 or so for me is OK so if my next lab is 140-145 not to panic - redo in a week or so and see... The important thing, I have realise, is the TREND of ones levels.. like if you went 79, 105, 118, 130.. you're going UP and clearly needs to be sorted... but if it went say 79 - 105 - 94 - 99 - 102 - 85... it's a bit bouncy but also in a general way fairly stable.One other point on that, without trying to sound like I think you were overreacting to the numbers or anything (I don't think so - I would hjave anyway probably in your situation, and that you knew something was going on which turned into the infection is something that would have needed checking anyway is a good thing). Anyway in US measures 79 is 0.89 and 105 is 1.18 - that is a difference of 0.3 - I think most people wouldn't consider that a huge dufference. The main thing is that, as with any concern, it's better to be safe than sorry and if at all concerned get checked(which you did!) and it can be handled.. if it's nothing than ok you wasted some time, but if it's something, you get onto it ASAP. Either way good outcome and at the very least you can be reassured that it's not so much to worry about, or get stuck into the meds and she'll be right.
Now just reading your latest that your dad (donor) is in there getting checked out for some reason - you don't say but you seem to suggest it may be related to his donation? It may be - it may not.. but I will say this even if it is related to his surgery... and this is an issue I've struggled with trying to work out ever since my sister was being tested as a match to donate to me - the potential guilt if something went wrong for her post the donation that could be traced back to that act - that I would feel so responsible. Now she never did end up donating to me so that issue is moot, but I've thought about it a lot over the years.. and after many discussions with more or less objective people about it I have come to understand this thing about it - she, like your dad, went into the process understanding the choice, and the potential, but small, risk and that with all such choices it is those who MAKE the choice who take responsibity for those choices and whatever happens. Now you (like me) are human and of course you feel guilt - specially if whatever is going on with your dad is related to the donation - but he made the choice to give this incredible gift to you. I'm not saying it isn't your responsibility or anything, but to understand and accept it was also his risk and his choice to take - not just yours- and I'm sure, even now with whatever he's suffering with - that he feels you being able to get a more normal life with youre family is worth it.