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| | |-+  From Being an Care Taker to Kidney Donor (Any Input would be great)
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Author Topic: From Being an Care Taker to Kidney Donor (Any Input would be great)  (Read 8703 times)
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #25 on: May 08, 2012, 06:39:22 PM »

3 Days for the workup? That's it? Man, I had to do the 24 hour urine twice (once to show I was okay and then once near the end to make sure everything was still okay). Then I had to have like a million bottles of blood, a 3D CT scan, a renal ultrasound and a nuclear scan of some sort where they injected radioactive material into me and had me lay on a table and watched the radioactive material (I am not sure if it's really radioactive, but they gave me some card that said I could set off a radiation detector for up to 3 days) go through my kidneys to make sure that they both did 1/2 the work, or close to it. The whole thing took like a half dozen trips to the hospital.

I am really happy for you though, and I hope the process goes smoothly from here on out.
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
krismimo
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« Reply #26 on: June 13, 2012, 02:20:34 PM »

So I went through the three days of testing, the 24 hour urine test, the EKG ,the ultrasound with the infused radioactive "Warm" dye. I had the evaluation from the social worker, the Kidney doctor, and the psychologist. This past Friday I finished all the testing. Today I got a call I'm healthy and they asked when I was ready to do the operation they could do it as early as July!!! I was overwhelmed. But in a good way. I said I'm shooting for August, I have help, I have support from work and home. I spoke to the hubby about it he is happy but also overwhelmed. They are going to give him my left Kidney. The next thing I have to do is speak to the surgeon and if I have any questions that is the time to ask him, oh and I to do a chest exam. The exam is set up for the same day as my appointment with the surgeon. So pretty much my husband isi going to get my kidney by the end of the summer...of this year.. WoW
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #27 on: June 13, 2012, 03:35:35 PM »

 :yahoo; YAY! Great news!
I am sure you have done plenty of research but if you want to visit a forum similar to IHD check out Living Donors Online http://www.livingdonorsonline.org/ldosmf - you can also get a donor "buddy" who is someone who has donated in the past and can be a mentor, if you'd like. There are also links, like what recovery is like and what to bring to the hospital.
 :beer1; Best wishes to you both!
Living Donors ROCK!  :bow;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
krismimo
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« Reply #28 on: June 15, 2012, 05:28:59 PM »

THANK YOU SO much I will check out the link I'm trying my best to deal with the intial shock of what this all really means his life has been on hold for 6 years and mine for 4 and now we.. can be a little more normal? WOW.
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