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Author Topic: Biggest concern after a transplant  (Read 2114 times)
Kayholio
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« on: June 09, 2012, 11:31:54 AM »

If I do go through with a transplant, meaning I can get a donor, my biggest concern is that my glomerulonephritis will come back and attack the donated kidney. I know that's what the drugs are for post tx, but I'm still really scared that it will come back. :/
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December '99 : Diagnosed with kidney disease
September 15th '11 : Went into stage 5 ESRD
September 19th : Started hemo with permacath, PD cath inserted
September 28th : Started manual PD
November 9th '11: Started PD on cycler
jbeany
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« Reply #1 on: June 09, 2012, 11:45:06 AM »

Everyone with a transplant has reason to be scared it will fail.   I think having a cause besides rejection to worry about would make it worse.  But....I think any time spent with a transplant and off dialysis is worth the fear.    :cuddle;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

cassandra
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When all else fails run in circles, shout loudly

« Reply #2 on: June 09, 2012, 01:06:58 PM »

did you discuss this with a nephrologist? They could tell you if your fear is grounded or not.
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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