darkpixie08
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« on: May 14, 2012, 08:02:10 PM » |
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Not sure if I should post this here, or in the travel section. My father is currently using the new Liberty dialysis cycler. I had read that the older model (the Newton?) did not do well on cruise ships because the pump was gravity based. Has anyone had any experience with the newer model? Would we run into the same problems? He'd really like to go on a cruise, and my mother says that doing manual exchanges would be difficult because it requires different equipment/supplies to have to be sent, since he would be using the cycler on the first part of the vacation. I'm not as familiar with what's required, so I don't know how much extra effort it would be, apart from the fact that the manual exchanges would take up more of his day.
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Joe
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« Reply #1 on: May 15, 2012, 05:36:09 AM » |
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I'm not familiar with the Liberty Dialysis cycler, I use the Baxter system. But I'm sure someone will have some advice for your Dad here shortly. And BTW,  to IHD! Hope you enjoy it here. |
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
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JLM
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« Reply #2 on: May 15, 2012, 07:12:15 AM » |
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Have you put this question to your nurse or the Liberty tech support?
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I'm just where God wants me to be, not one step ahead nor one step behind.
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darkpixie08
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« Reply #3 on: May 15, 2012, 11:51:08 AM » |
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Have you put this question to your nurse or the Liberty tech support?
I hate to say this, but while the staff and nurses at the clinic are very sweet, they are not exactly what I would consider the best and the brightest in the field. They did not seem very knowledgeable about this machine verses the older version. |
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Joe
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« Reply #4 on: May 15, 2012, 11:54:26 AM » |
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You could always call tech support and ask them. They should have the answer you need.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
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highway61
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« Reply #5 on: May 15, 2012, 05:39:37 PM » |
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I agree with Joe, you should discuss this with the Liberty tech support folks. I don't think it is gravity based, but I don't really know for sure.
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smcd23
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« Reply #6 on: May 15, 2012, 06:41:43 PM » |
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I believe it works on pneumatics, but I am not 100% sure. I would call the Fresenius travel line and ask them. I feel like they would be more knowledgeable about this than the nurses or tech support, since they are the ones in charge of getting the supplies where they need to be. I am sure my SO would not mind putting the cycler in the bathtub tonight and testing it out for you. He'd do anything to destroy that machine  |
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Caregiver to Husband with ESRD.
1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.
March 2008 - Started transplant evaluation for preemptive transplant due to declining function.
September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.
October 2008 - Listed in Region I
May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler
June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.
Now what?
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kporter85db
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« Reply #7 on: May 15, 2012, 09:33:22 PM » |
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I have been on the Liberty for almost a year now and have checked into this. I am told that the cycler will not work on cruise ships because of the scale that the heater bag sits on. They say the rocking motion of the ship will cause multiple alarms. I would love to hear from someone who has tried it though.
Fresenious will tell you to do manuals while on board.
I'm not sure why your mom thinks manuals will be to difficult. There's really not that much to it.
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May/2010 Sulfa based antibiotics killed my already weakened kidneys, almost
Feb/2011 PD catheter placed
July/2011 Started Peritoneal Dialysis
Nov/2013 Started NxStage 5 days/week
Ken
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highway61
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« Reply #8 on: May 16, 2012, 05:40:10 PM » |
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I agree with kporter85db that manuals should not be that difficult.
At the end of my time on PD I had reached a point where I had more faith on manuals than I did on the cycler. To me the cycler offered greater convenience but at a loss of control, I felt that I was at the mercy of the machine. With manuals you are totally in control.
So while at sea and not worried about having to go to work every day I think manuals would be better.
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Grumpy-1
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« Reply #9 on: June 11, 2012, 05:21:29 AM » |
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I'm planning on going on a cruise next year and using the cycler. I would love to hear back about this as well. BUT - I don't have any heartburn about doing manuals - except having to get up a couple time in the middle of the night to do an exchange. Grumpy
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Make me the person my dog thinks I am
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packshortie
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« Reply #10 on: July 11, 2012, 12:07:25 PM » |
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I just got back from a week cruise to Alaska and took my cycler. I had no problems at all even when the ship was really rocky one night.
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Grumpy-1
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« Reply #11 on: July 16, 2012, 10:20:52 AM » |
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great !!!!  Thanks for the info |
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Make me the person my dog thinks I am
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