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Author Topic: How to add your organ donor status to your Facebook timeline...  (Read 3281 times)
jbeany
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« on: May 01, 2012, 07:49:15 PM »

http://newsroom.fb.com/News/Organ-Donation-Friends-Saving-Lives-15f.aspx

Looks like it only works if you are already doing the timeline set-up, but it's easy to add.
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Chris
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« Reply #1 on: May 01, 2012, 09:52:10 PM »

I dislike the timeline though and have not switched over or forced yet. Wish there was a box to check that states received an organ(s) tho. Other thing is how does ths effect privacy settings since fb likes to mess with that a lot!
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Poppylicious
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« Reply #2 on: May 02, 2012, 10:01:06 AM »

I dislike the timeline though and have not switched over or forced yet. Wish there was a box to check that states received an organ(s) tho. Other thing is how does ths effect privacy settings since fb likes to mess with that a lot!
I LOVE the Timeline ... Plus I've never had a problem with privacy (although I do go out of my way to check my settings about once a month; it takes about two seconds and I've never had Fb unknowingly state my everything to the world.) I did dislike the Timeline when it first came out, but now I've had it a couple of months I've grown quite fond of it.  By the time they force it upon you, it'll be time for them to roll something else out which is double annoying!

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
deniferfer
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« Reply #3 on: May 02, 2012, 12:21:46 PM »

I like the timeline, I founded it easier to see thing. lol  But i do also with they had a in need of a organ box or even one if they would wanted to be a living donor and they could do like a match.com sorta thing and pair people up.
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1981-1995: Perfectly fine
1996: November, started feeling sick
1997: April, creatine at 17 and began dialysis    
1997: May Place on PD
2006: Had to replace PD tube
okarol
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« Reply #4 on: May 02, 2012, 02:56:29 PM »

What an incredible impact facebook has made!
Here's the 24 hour California Donor Registry change post FB organ donor status....over 5,000% of normal!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
deniferfer
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« Reply #5 on: May 02, 2012, 03:02:18 PM »

What an incredible impact facebook has made!
Here's the 24 hour California Donor Registry change post FB organ donor status....over 5,000% of normal!

WHOA that's amazing!!!  :2thumbsup;
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1981-1995: Perfectly fine
1996: November, started feeling sick
1997: April, creatine at 17 and began dialysis    
1997: May Place on PD
2006: Had to replace PD tube
jbeany
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« Reply #6 on: May 02, 2012, 03:20:09 PM »

They have the same options to limit who can view your donor status as they do with the rest of your posts, so you just have to select it when you add it to your events timeline.

I haven't switched over yet either.  I haven't been on it long enough or posted often enough to get them to encourage me to do it.  I'm just not that active on it.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Chris
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« Reply #7 on: May 02, 2012, 06:28:03 PM »

For me it is hard to find things on the timeline. To me it is confusing when there are post on each side of the screen, not to mention the big picture at the top of the screen throwin my eyesight off.
 
It is great that there is an impact so soon and hope people do not change their minds later on.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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