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Author Topic: Getting my catheter out  (Read 5319 times)
Restorer
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« on: April 05, 2012, 09:43:09 AM »

I'm scheduled to get my catheter out on Wednesday!  :cheer:

But I forgot to ask if I'll be able to drive myself home or if I'll need a ride. They didn't mention it, but they said I'd need to fast for 8 hours before. Does that imply some kind of sedation aside from the local anesthetic? The procedure is at a radiological imaging center, not the hospital, so I don't know what they can and can't do there.

Has anyone had a long-dwelling (mine has been in for 2 years) catheter removed? Did they use anything other than local anesthetic?
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
MooseMom
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« Reply #1 on: April 05, 2012, 09:47:20 AM »

My mother had her catheter removed in the surgeon's office.  I was not right there with her when he took it out...I was waiting outside, but she looked pretty chipper afterwards.  It took all of 10 seconds.  She may have had a local anesthetic but I don't recall anything "deeper".  I did the driving, though.

Oh, and she had had hers for 18 months.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cattlekid
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« Reply #2 on: April 05, 2012, 09:50:24 AM »

I had mine for a few months and I drove myself to work afterwards.  Just expect a lot of pulling and tugging and snipping and then a huge sense of relief.   :2thumbsup;
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Restorer
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« Reply #3 on: April 05, 2012, 10:50:21 AM »

Thanks.  :grouphug;

I guess I didn't need to ask; as soon as I got to dialysis, I was given a faxed appointment sheet with the "MUST HAVE DRIVER" box unchecked. So, I should be good to get myself there and back.

I looked at the instructions for removing the brand of catheter I have, and it says to NOT yank it. Removing it will have to involve cutting out the cuff, which is about an inch above the exit site. Fun!  :sarcasm;
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
Cordelia
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« Reply #4 on: April 05, 2012, 12:11:43 PM »

Hope everything goes okay.       :clap;     I'm hoping to get mine removed this month sometime too. My fistula has been used with minimal problems since February and I'm really, really getting restless to get it removed.    I'll be curious how it goes, let us know, ok?           :cuddle;

I likely would have gotten the 'order' for it this week but because our lab had a spilling and they closed the lab down, the doctor won't be in this week because no labs were done. Now I have to wait til next week hopefully the doc will be in then and set up for the removal and I can get a date-I hope.        :bow;

Mine's been in it will be two years this coming August.
« Last Edit: April 05, 2012, 12:14:39 PM by Cordelia » Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
big777bill
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« Reply #5 on: April 05, 2012, 12:34:41 PM »

Restorer I hope it all goes well for you next Wednesday. I've had Picc lines removed before and they were a piece of cake. I  know the long term catheters are more involved but they do this regularly with no problems. All I need is to get my buttonholes established and I'm right behind you, bye-bye catheter.  :bandance;
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liver transplant 3/22/2005
CKD 2008
 
fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
 NxStage at home  3/29/2012
 Using fistula at home 6/25/2012
 Using new NxStage S High-Flow cycler 3/04/2014
Whamo
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« Reply #6 on: April 05, 2012, 05:07:34 PM »

It's rather unpleasant, a lot of tugging at your chest, which can be unnerving.  But it doesn't hurt, and you should be able to drive home afterwards. 
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amanda100wilson
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« Reply #7 on: April 05, 2012, 06:05:13 PM »

I would be inclined to have someone drive me for the reason that if you were to be involved in an accident in the car it may be difficult to prove that your procedure was not a causative factor and it may also possibly invalidate your insurance.
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
Restorer
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« Reply #8 on: April 05, 2012, 06:44:23 PM »

I would be inclined to have someone drive me for the reason that if you were to be involved in an accident in the car it may be difficult to prove that your procedure was not a causative factor and it may also possibly invalidate your insurance.
The insurance company could probably argue that about dialysis too, which I drive myself home from every time. It's not much of an additional risk.

It's rather unpleasant, a lot of tugging at your chest, which can be unnerving.  But it doesn't hurt, and you should be able to drive home afterwards. 
Couldn't be any more unpleasant than removing a ventilator tube, right? No gag reflex in my veins!  :rofl;
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
Gerald Lively
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« Reply #9 on: April 05, 2012, 10:06:19 PM »

My catheter was taken out on Tuesday.  It took about two minutes including the shot to deaden the area.  BFD.
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Hodgkin's Lymphoma - 1993
Prostate Cancer - 1994
Gall Bladder - 1995
Prostate Cancer return - 2000
Radiated Prostate 
Cataract Surgery 2010
Hodgkin's Lymphoma return - 2011 - Chemo
Renal Failure - 2011
Renal Function returned after eight months of dialysis - 2012
Hodgkin's Lymphoma returned 2012 - Lifetime Chemo


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have their roots in human needs.

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Poppylicious
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« Reply #10 on: April 06, 2012, 04:05:43 AM »

Blokey drove himself home after having his removed.  He did only have it about four months though.
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- wife of kidney recepient (10/2011) -
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mykey711
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« Reply #11 on: April 06, 2012, 11:29:58 AM »

Essentially, they yank it out. You'llprobably get a local anesthetic at the entrance site. It's not a big deal.
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I'm a 58 year old Family doctor with Alport's syndrome. I've been on PD for almost a year. I've been on transplant list since May 2010 at three centers, Michigan, Cleveland, and Indiana.  My brother has the same disease and is on his second transplant for about 12 years now.
Restorer
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« Reply #12 on: April 06, 2012, 12:00:51 PM »

I'm pretty sure different types of catheters are taken out different ways. Some are more permanent than others. Some are older models that use inferior tunnel techniques. Mine is anchored very securely. If they tried to yank it out, they'd probably rip out chunks of flesh!
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
Cordelia
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« Reply #13 on: April 06, 2012, 12:20:34 PM »

Wow! I had no idea there were 'different' types! LOL!

I wonder if they'll 'yank' mine out?         :P
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
sullidog
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« Reply #14 on: April 06, 2012, 05:18:10 PM »

mine they cut out, my last one was a yanker, but I healed so well they couldn't yank that one, either so they had to cut.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
The Lady
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« Reply #15 on: April 07, 2012, 12:49:30 PM »

I'm pretty sure different types of catheters are taken out different ways. Some are more permanent than others. Some are older models that use inferior tunnel techniques. Mine is anchored very securely. If they tried to yank it out, they'd probably rip out chunks of flesh!

I use these kinds of permacaths as well.

I have had to have mine replaced like 4 times over the last year.

They will numb the area and then very carefully work the cuff out of your flesh. Once the cuff is freed, it really is just some pulling and tugging. It won't take very long and the discomfort is really minimal. The most you might need is a Tylenol or two over a couple days...if that.

Good luck!
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cassandra
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« Reply #16 on: April 07, 2012, 04:01:22 PM »

Well Restorer I think you have plenty of info now. Just wishing you all the best next Wednesday

love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
rocker
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« Reply #17 on: April 08, 2012, 03:06:23 PM »

I watched hubby's get taken out.  There was a shot of lidocaine (pretty freaky, the skin around the cath blew up like a balloon, but it didn't seem to bother him), then some tugging.  I felt a little faint when the doc got the scissors out, and then there was some snipping, and more tugging, and some swearing and snipping, and then more tugging, and then it was out.  Hubs looked bored the whole time.

Then a bandaid, and we left.

  - rocker
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Riverwhispering
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« Reply #18 on: April 08, 2012, 04:06:22 PM »

Is the reason you all had catheters because you had hardly any warning that you had kidney disease?  I has plenty of warning and have my fistula ready to go when needed
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Restorer
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« Reply #19 on: April 08, 2012, 05:12:16 PM »

Is the reason you all had catheters because you had hardly any warning that you had kidney disease?  I has plenty of warning and have my fistula ready to go when needed
I had no warning that PD was going to fail for me. Well, okay, there was lots of warning, but we were trying hard to keep me off of hemo. But I put on too much fluid weight and had trouble breathing, so straight to the ER and then the hospital for a week. Towards the end they took the PD catheter out and put in a hemo catheter.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
Restorer
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« Reply #20 on: April 11, 2012, 11:35:33 AM »

I got it out this morning!  :yahoo; :bandance;

The doctor first tried to reach in through the exit site to get the cuff to unstick so he could pull it all out, and of course that didn't work. I told him the cuff was much higher up, and he realized he'd have to start cutting. So he cut into my skin right where the cuff was, and said something like, "Oh, yeah. Wow. That's not going to come loose." After that it was like deboning a chicken leg - lots of cutting and basically peeling away flesh from the cuff with a scalpel. It took a while, and lots of lidocaine.

Then he stitched me up, and when everything was just about done, I felt lightheaded, so they tilted me back on my head and took my blood pressure - 117/73, which can be low for me, but isn't always. I got a dressing, then he looked at the scar on my neck where they originally inserted the catheter, because yesterday a nurse noticed a weird blemish on it, like there was a piece of stitching in the scar. He dug around a little, and said it looked like just a weirdly healed spot, maybe some dirt got caught in it, but it looked fine.

It was a weird experience. I did the whole thing sitting up. Lots of digging and scraping and tugging, and I didn't directly feel any of it, but I could tell where he was working, even down to which side of the cuff he was scraping at. But no pain. I even drove myself home. Now the pain is breaking through and I've taken some Tylenol.
« Last Edit: April 11, 2012, 12:03:04 PM by Restorer » Logged

- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
sullidog
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« Reply #21 on: April 11, 2012, 05:42:40 PM »

yours sounds like mine, I hear the hier up they are tunneled the cleaner it makes them.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
cassandra
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When all else fails run in circles, shout loudly

« Reply #22 on: April 12, 2012, 04:05:48 PM »

Well R thats done for now. Heal well up mate
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Jean
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« Reply #23 on: April 13, 2012, 01:09:11 AM »

Glad that is all behind you and now you can start healing and put it behind you. Happy that it all went well too.
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One day at a time, thats all I can do.
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