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Author Topic: Hooowwwwwwdyyy (said like Minne Pearl!)  (Read 3119 times)
conchman
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« on: March 04, 2012, 08:28:43 AM »

Hey all,

I’ve been lurking for a while, okay for maybe like a year…I am real slow!  Just a little about me, I am 49 year old male (to abide by the legal stuff here).  I was diagnosed when I was in my 20’s, PKD.  Dad had it, I have it, now son has been confirmed to have it. (yeah!).  I was getting twice a year blood draws and it was getting a little annoying, when two years ago my general stated there was a friend of his he wanted me to meet, a Mr. Nephrologist.  I started out two years ago at 40%, now down to 35%.  My first general said when I was first diagnosed that I might live my whole life without any issues, liar!   :urcrazy; I will be updating things as I settle in, I would like to become a trusted member of this forum, bring my life’s experience, a try not to irritate the heck out of the moderator by breaking any rules…two lessons I already learned…

1)  When trying to update your profile I had to click on update profile then “tab” thru to select, not hover mouse over (weird huh!)
2)  When trying to spell check, I clicked “spell check, (because I can't spell worth "you know what”) and poof, draft disappeared and this now is take two, weird huh, kinda’ like a super-secret test to see if I am worthy…(this time I started in Word then copied over)  fool me once...fool me twice, ya'll know this one!

All for now…graduate from lurker/stalker to newbie member…
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
boswife
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us and fam easter 2013

« Reply #1 on: March 04, 2012, 09:35:25 AM »

Love your intro and  :welcomesign;   Yep, it's a good time to jump in and get to posting :) such a fine place as you've already seen :). So jump in and share  :flower;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
justjen321
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WWW
« Reply #2 on: March 04, 2012, 09:50:24 AM »

Welcome welcome. :) Lots of knowledge here, and room to share your own.
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TIA reveals failed kidneys (completely unexpected) January 2011
Husband on home PD since May, 2011
Switching to NxStage Home Hemo Nocturnal early spring of 2011

http://failedbeans.blogspot.com/
Traveller1947
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« Reply #3 on: March 04, 2012, 10:46:18 AM »

Hi, conchman, and welcome!  You'll find lots of information here and some laughs too.  All the best to you.
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Poppylicious
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« Reply #4 on: March 04, 2012, 12:27:34 PM »

 :welcomesign; conchman!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
jbeany
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Cattitude

« Reply #5 on: March 04, 2012, 12:49:45 PM »

Welcome conchman!

Ah, yes, the joys of computers...I promise, it wasn't a test.   ;D

jbeany, Moderator
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

willowtreewren
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My two beautifull granddaughters

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« Reply #6 on: March 04, 2012, 02:17:35 PM »

Howdy, Conchman! Somehow I can't see you with a price tag hanging off your straw hat.  :rofl;

 :welcomesign;

It sounds like you have had a very proper initiation!  :2thumbsup;

And I'm glad you have graduated.  :clap;

We have PKD in our family. Husband and his sister both have it as their dad did. Also our daughter (who is now pushing 38). Bad news, though, it affects her liver, too. Bah! Nieces and nephews are too scared to be tested.  :banghead;  But then, they didn't offer to donate, either.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lmunchkin
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"There Is No Place Like Home!"

« Reply #7 on: March 05, 2012, 08:27:31 AM »

Welcome Concman.  You are not the first newbie to have issues with Profile.  I too, had problems!

Again welcome & God Bless,
lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
looneytunes
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Wishin' I was Fishin'

« Reply #8 on: March 06, 2012, 07:46:52 AM »

Howdy back at'cha Conchman and  :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
conchman
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« Reply #9 on: March 07, 2012, 06:07:35 PM »

Thanks all, so far so good, got my avatar fixed, posted my first ever pics of my best bud in the everything goes section, looking forward to a long, long time with all..."god willing and the creek don't rise"

 :thx;
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
cariad
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What's past is prologue

« Reply #10 on: March 09, 2012, 07:43:40 PM »

I am late in welcoming you, conchman, but welcome you I do!

Thanks for joining, and I see you've already made yourself at home, so I'll look forward to seeing more from you throughout the forum. :waving;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #11 on: April 09, 2012, 09:55:54 AM »

I am adding my quite belated WELCOME!  Your name interests me, since I live in a territory where conchs reign supreme.  How did you come by this name?  In one of our sister islands, Anegada  (I live in the British Virgin Islands) conchs are very prolific.  There are even mounds of conch shells there.  You will find a pict of some mounds at this address -
http://www.panoramio.com/photo/48904115
Looking forward to hearing more from you,


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
conchman
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« Reply #12 on: April 09, 2012, 04:16:50 PM »

Thanks Bajanne, Carid.  Bajanne, the name I hope shows my love for all tings' Caribbean.  I did see that you reside in the islands.  My wife and I have traveled, always with an island in mind.  Cayman's, Abacos, however we always end up back in St. john.  We have already booked for this October, a villa called Alta Vista.  Coming down with the daughter and son in law, and two of the 4 grandkids.  I know that in a few years we may not be able to make it down, so I wanted at least one big trip with all of us.  The PKD is starting to make things uncomfortable, constant rib shot's, tired a little more than I would like.  Levels are still "ok" so we will still hopefully be able to enjoy ourselves.  People ask what do we do on St. John, I tell them, I watch the waves come in, then watch the waves go out...I watch the waves come in, watch the waves go out....you know what I mean...

Thanks again, and who knows maybe someday we can meet up...island style...

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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
kellyt
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« Reply #13 on: April 09, 2012, 06:17:42 PM »

 :thumbup;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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