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Author Topic: Dialysis access troubles.  (Read 2099 times)
Katonsdad
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« on: March 25, 2012, 08:05:02 AM »

For the third time my left upper arm access has clotted . This time I never even got to use it, bummer!!!
I am now on a chest cath , that I must say is the best one I ever had. It hangs down just right and I can
forget it is there sometimes
My regular Vascular surgeon was on vacation when it clotted for the third time so they sent me to another one and he
has decided the best place for my new access is on my upper chest , lower shoulder area.
When they asked me at the Dialysis center what they where going to do I told them and they looked at me like I had
lobsters coming out of my ears . They all say Oh Yeah , Havent seen that in years .
It seems easy to me but they all look at me with wonderment.   This is not my choice , I just keep clotting.
Does anybody else have this ?

Katonsdad
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Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
 purr purr purr ::
Sheldon and Penny on The Big Bng Theory
cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: March 25, 2012, 04:17:49 PM »

I'm sorry to hear that, and maybe you will have a subclavia-catheter. I had that when I was younger. Worked well for quite a while I remember. Good luck, hope it works for a good time.

love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Whamo
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« Reply #2 on: April 01, 2012, 09:12:40 AM »

Wow, my new fistula works, but they have trouble hooking me up.  I hope I don't have to go back to a catheter because fistulas are the gold standard for access.  The one thing I liked about a catheter is that they are easy to hook up.  Even the less competent nurses know how to do it.  I also enjoy showers, and with a catheter I never took one because I was afraid an infection.  I plan to do a little surfing this summer too.  You might try cleaning out your arteries with diet and exercise.  They say butter is the best thing for your arteries, but I've been able to clean them with concentrated fish oil.
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Rerun
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Going through life tied to a chair!

« Reply #3 on: April 01, 2012, 10:44:24 AM »

How much EPO are you on and what is your Hematocrit?  I ride the low side so I don't clot.  I'm also on a baby aspirin everyday.
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Katonsdad
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« Reply #4 on: April 04, 2012, 05:10:01 PM »

1 regular asprin , plavix and grestor.  blood pressure has been 90/50. not sure on epo.
Logged

Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
 purr purr purr ::
Sheldon and Penny on The Big Bng Theory
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