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Author Topic: Hi from Perth Western Australia  (Read 3215 times)
Sue
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« on: March 14, 2012, 05:58:33 PM »
 :waving; Hi I'm Sue  :) I'm from Perth Western Australia, I was diagnosed with CKD just over 41/2 years ago, brought on by vesicoureteral reflux. I had surgery to re-implant my ureters a couple of years ago which stabilised my kidney function at 16%, All good til last September when my function took a bit of a dive down to 12% ::) After having ureteral stents put in ( and out again lol) and hoping for improvement which never came - It was decided that the time had arrived for fistula formation surgery which I am having on 10th April.
I am hoping that I will be able to have home dialysis (HD) I have already been to training unit, but it seems that I will have to go to in hospital dialysis unit for a while first. I am of course hoping that the big D day is still a while off!
I'm 62 - married have 3 sons and two beautiful grandaughters .
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
conchman
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« Reply #1 on: March 14, 2012, 06:31:24 PM »
 :welcomesign;

Welcome Sue.  Keep coming back...

 :clap; :yahoo; :waving;
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"If I had trouble the warranty said, breathe in, breathe out, move on"- J.Buffett

1991 diagnosed PKD (kidneys, liver)
2010 kidneys at 35% (left 2x size)
2011 kidneys at 30% (left 2x size)
MaryD
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« Reply #2 on: March 14, 2012, 08:28:41 PM »
Welcome Sue.  There are quite a few Aussies here.  My daughter lives in Perth - a lovely place, but a bit hot at the moment.
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Traveller1947
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« Reply #3 on: March 15, 2012, 03:07:28 AM »
Hi, Sue, and welcome!  There are a lot of good and generous people here who will will glad to share their experiences with you.  There's much to learn here and much support.  Some laughs too...All the best to you.
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willowtreewren
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My two beautifull granddaughters

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« Reply #4 on: March 15, 2012, 03:11:29 AM »
HI, Sue!

 :welcomesign;

This is a good place for company and sympathy!  :clap;

Welcome to the boards and I hope you can keep off Dialysis for a while, too.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Sue
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« Reply #5 on: March 15, 2012, 03:50:06 AM »
Thank you for the welcome :) It is nice to find a place where people understand.............
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Poppylicious
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« Reply #6 on: March 15, 2012, 06:48:32 AM »
 :welcomesign; Sue!
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- wife of kidney recepient (10/2011) -
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grumbles of a dialysis wife-y (kidney blog)
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Everything was beautiful, and nothing hurt.
looneytunes
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Wishin' I was Fishin'
« Reply #7 on: March 16, 2012, 08:18:23 PM »
Hi Sue and  :welcomesign;  Glad you joined in. 
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"The key to being patient is having something to do in the meantime" AU
Gerald Lively
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« Reply #8 on: March 16, 2012, 11:01:48 PM »
Sue;

I like Perth.  Never been there.

I have had six surgeries and still do not have a fistula.  Must be my wimpy arms.  So, there I am sitting in the dialysis chair when I emitted this gigantic gaseous emission.  Needless to say, the dialysis center was unhappy.  So, they kicked me out.  Well, I still don’t have a fistula nor do I do dialysis.

Lesson:  A little fart cures a lot of evils.
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Hodgkin's Lymphoma - 1993
Prostate Cancer - 1994
Gall Bladder - 1995
Prostate Cancer return - 2000
Radiated Prostate 
Cataract Surgery 2010
Hodgkin's Lymphoma return - 2011 - Chemo
Renal Failure - 2011
Renal Function returned after eight months of dialysis - 2012
Hodgkin's Lymphoma returned 2012 - Lifetime Chemo


Human hopes and human creeds
have their roots in human needs.

                          Eugene Fitch Ware
Jean
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« Reply #9 on: March 16, 2012, 11:55:02 PM »
 Hi Sue, and   :welcomesign;  to IHD.
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One day at a time, thats all I can do.
Bajanne
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« Reply #10 on: March 18, 2012, 07:16:11 AM »
Welcome to our community, Sue!  It is great to welcome another Aussie.  However, I am not feeling so happy with Aussies right now after what they did to the Windies in cricket!!
You have come to a great place for information, support and encouragement.  In fact, this is now your new family :grouphug;
Looking forward to hearing from you and being with you in  your journey.




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
boswife
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us and fam easter 2013
« Reply #11 on: March 18, 2012, 07:56:22 AM »
welcome Sue  :welcomesign;  Glad ya made your way here.. Somehow, knowing others in same situation makes ya feel so much more ok with it all..  I mean, if ya gotta go this route, it's sure a lot better to share with others...  ???  Hum, dont think im saying this right but  :welcomesign;  Hope you get some uplift and info...

and.......gl, you are so weard.. but hey, if it works, well, mabie i should have incouraged my hubby to 'let loose' instead of discouraging it..ha
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Sue
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« Reply #12 on: March 18, 2012, 04:47:02 PM »
:D Thanks evryone - This site has already helped me, I guess my biggest fear is fear of the unknown, it is really good to hear peoples experiences. The Dr makes it sound all so simple - kidneys fail - fistula surgery - dialysis !! But it is such a journey with so  many twists and turns isn't it....
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Life is not measured by the number of breaths we take, but by the moments that take our breath away.
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