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Author Topic: Another Turn in the Path  (Read 15006 times)
boswife
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us and fam easter 2013
« Reply #50 on: February 28, 2012, 03:11:42 PM »
 :2thumbsup;  Hope it continues like this..  So glad to hear it's doing 'its job' and he's feeling better.  Oh i hope it gets even better and you can have a p;iece of your life back :)   :grouphug;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
lmunchkin
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"There Is No Place Like Home!"
« Reply #51 on: February 28, 2012, 04:17:29 PM »
So glad the nocturnal is doing him well.  I wish J. could do it at home, but with me working and doing him afterwards, it really makes it hard.  I have been thinking about doing him 3 on 1 off, instead of 3 on 2 off, but his clearance is teetering, so maybe not yet. His labs are still good and he is happy!  Besides, it will have to come from the neph or clinic, cause Im not going to stipulate anything to him. 

Sounds like thats the ticket for your husband.  At least you can get some me time now!  :popcorn;

Congrats, Looney, :wine; I knew nocturnal would be much better!!!! 

God Bless,
lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
looneytunes
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Wishin' I was Fishin'
« Reply #52 on: March 08, 2012, 04:21:03 AM »
Update....hubby has committed to nocturnal and is still doing great.  The difference in him is amazing!    He has done more in the past 3 weeks than he was able to for the past several months. 

The fistulagram showed the same area in the SVC with narrowing, it was ballooned out and the flows are better.  So life is good in Looneyville.    :2thumbsup;
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"The key to being patient is having something to do in the meantime" AU
willowtreewren
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« Reply #53 on: March 08, 2012, 04:42:17 AM »
Such good, GOOD news!

 :2thumbsup;

 :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
boswife
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us and fam easter 2013
« Reply #54 on: March 08, 2012, 10:34:33 AM »
This is great newsI :)  And............. i dont remember what his scheduling is as far as how many days does he go in.   Im still thinking of stretching Bo's treatments behond the 4 hrs we do now to 6 if that would mean more days off :)  we do 3 on 1 oFF  and that was a GREAT incentive to go to 4 instead of 3 hr runs, now if it could get even better.... hum :)
Im sooooooooooo happy for you!!!
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
lmunchkin
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"There Is No Place Like Home!"
« Reply #55 on: March 08, 2012, 11:18:37 AM »
Great news, Looney.  Hopefully his access will remain open and allow good flow for greater cleaning!  I know you are releaved now.  Sooo happy for you and hubby!

God Bless,
lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
looneytunes
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« Reply #56 on: April 04, 2012, 09:06:02 AM »
Just an quick update for those who have followed this thread.  Hubby is still doing MUCH better on nocturnal than he did with home-hemo.  His labs are great and his clearance (kt/v) is much better.  He has gotten used to sleeping there and is now able to drive himself there and back most days. 

And I also am doing much better without the constant stress of daily treatment at home.  Though I would do it again in a heartbeat if that was what he needed, I must admit that always being on "alert" was more stress than I thought.  Sometimes you have to step out of the hole to see how deep it really is and that's what has happened here.

We took our first trip last week and he dialyzed as a visitor in a clinic twice.  Though he did not feel as good on the 4 hour run as he does after nocturnal, he still was able to participate and enjoy the time we spent away.   We are looking forward to another trip in a few months. 

Love to all.   :grouphug;
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"The key to being patient is having something to do in the meantime" AU
willowtreewren
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« Reply #57 on: April 04, 2012, 12:29:00 PM »
Oh, Looney! This is music to my ears. I'm so glad that you have found yourselves in this better place.  :cuddle;

 :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MooseMom
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« Reply #58 on: April 04, 2012, 02:02:56 PM »
Oh, this is just terrific news, it really is!  You both must be so relieved!  Well done!  I want more updates, please! :2thumbsup;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Poppylicious
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« Reply #59 on: April 04, 2012, 03:15:00 PM »
Brilliant news looney. 

*huggles*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
lmunchkin
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"There Is No Place Like Home!"
« Reply #60 on: April 04, 2012, 03:32:54 PM »
AWESOME Looney!  This is exactly what he needed and happy  the two of you got away!  Good eye & Good Job!!!!

lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
billybags
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« Reply #61 on: April 06, 2012, 10:48:15 AM »
Looney, I am so pleased for both of you.
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del
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del and willowtreewren meet
« Reply #62 on: April 06, 2012, 05:55:54 PM »
Wonderful!!! :yahoo;
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Don't take your organs to heaven.  Heaven knows we need them here.
looneytunes
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« Reply #63 on: May 12, 2012, 06:38:22 PM »
Another update for all of my IHD family....things are still great.  Nocturnal has given him his "man" back.  He is SO much more active than he was before.  He is able to do physical work several hours a day now and though he still can not walk any distances, he is doing so much better and I am continually amazed.  Thank God for nocturnal!   I know that the "other shoe" can fall at any time but I am so very thankful for the good time we are having right now.   :grouphug;  :grouphug;   :grouphug;
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"The key to being patient is having something to do in the meantime" AU
billybags
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« Reply #64 on: May 13, 2012, 03:48:00 AM »
Wonderful, wonderful so glad things are going your way. Dont let him wear his self out.
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monrein
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Might as well smile
« Reply #65 on: May 13, 2012, 04:32:23 AM »
So thrilled to read this news.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
boswife
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us and fam easter 2013
« Reply #66 on: May 13, 2012, 10:32:41 AM »
oh boy!!  so good to hear this   :bandance;  Sure is a push for nocturnal!!  It's gotta be super for him and YOU!!  All this and his' going 3 nights??  wow!  what ever it is, how wonderful  :clap;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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