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mav72
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« on: February 09, 2012, 02:34:06 PM »

Hell there ,
My names Mike and I'm from Melbourne , Australia. I'm 52 years young  . I have had degenerative kidney disease for a long time and have succumb to having to go on dialysis . I'm only a new-by as I have just had my 5Th run and was so happy to stumble across this site . To be able to talk to people with the same problems is a god send . As I'm not one for the computer .I have already had a multitude of question answered by this forum and appreciate it . My wife and I have a better understanding of this illness and with the help of this forum It can only make it easier to work Thur.I have been offered kidneys by three people as live donors but I cannot get my head around that just yet .Is this a normal reaction ? sorry , but probably not the best place to ask that question.Anyways please all of you take care and stay safe .
regards mick
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MaryD
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« Reply #1 on: February 09, 2012, 02:45:02 PM »

Hello Mick

I'm from Melbourne, too.  Welcome to this site.  It must be the most information-laden place on the internet!

It's all hard to get your head around it all to begin with but there'll be someone with the answer here
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MooseMom
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« Reply #2 on: February 09, 2012, 02:50:09 PM »

One of our mods is from Melbourne; I'm sure he will be by to welcome you.

We have plenty of people on this forum who have had live donors, so feel free to ask any question you like about it!  There is a transplant section you might want to have a look at; feel free to post your questions there.

I'm glad you have decided to join!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Rerun
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Going through life tied to a chair!

« Reply #3 on: February 09, 2012, 03:22:14 PM »

Hi "M" and welcome to IHD.  I'm so glad you found us.  Lots to learn here and you can ask "any" question you want to. 

See you around.

Rerun, Moderator     :welcomesign;
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Traveller1947
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« Reply #4 on: February 09, 2012, 03:39:58 PM »

Welcome, Mike!  You've come to the right place for information and support and a chuckle now and then too.  So relax and ask anything you want.  There's bound to be someone here who's experienced the same thing and is willing to share.  All the best to you.
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willowtreewren
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My two beautifull granddaughters

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« Reply #5 on: February 09, 2012, 03:43:21 PM »

Hi, Mike.

Yep, lots of Aussies here.  :2thumbsup;

You may want to go to the transplant area with your question, but my husband also had a hard time wrapping his head around live donation. I would have MADE him take one of mine if they had been up to par!  :lol;

Looking forward to getting to know you.

Aleta

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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
RichardMEL
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« Reply #6 on: February 09, 2012, 04:15:46 PM »

G'day Mick & Welcome to IHD!

Yes, I've already been dobbed in - I'm in Melbourne too. All the cool kids are in Melbourne - we've got you and Mary, there's myself, Wattle and Ang, and a couple of others. We should all organise to get together - we could probably fill a tram with our mob!

So glad you've found this site helpful and informative to help you and your wife try and deal with this new stage of life. Having information and a community of support can be very important - and that's one reason we're all here.

With regards to your question re living donors for transplant - sorry to inform you that you're normal (unless you barrack for Collingwood  :rofl;) in that regard - At least I think so. My two siblings were also tested - one knocked back and the other never quite got there as I got the magical call before that worked out. I know when my sister, who is a matc for me, was going through the tests and more and more of them being passed that the reality of it possibly happening made me feel quite responsible for such a wonderful gift and obviously if anything might occur because of that donation... well it's a huge emotional burden to bear.. and honestly when she was knocked back at the last hurdle... I was, I think, more relieved than sad - which may sound very odd I guess.. but I was.

Now I have the wonderful gift of a generous soul and family who I do not know, but think of every day I am free of that machine. I can only imagine some of the thoughts you are dealing with both in relation to having to start on D and the potential donors you have.

Hang with us not only are we the cool kids, but there's a lot of support here and a place to ask questions, vent and generally find people who have some idea of the kinds of stuff you're dealing with.

Again, welcome!

RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
CebuShan
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« Reply #7 on: February 10, 2012, 05:18:59 AM »

   :welcomesign;   Glad you are here with us! One day, I hope to spend Christmas "down under". (So tired of snow and cold weather at Christmas!)    I had a hard time wrapping my mind around ANY transplant! Ask your questions, someone here can answer!
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
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lmunchkin
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"There Is No Place Like Home!"

« Reply #8 on: February 10, 2012, 04:03:20 PM »

Welcome Mick!  You have found a great home!

lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
looneytunes
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Wishin' I was Fishin'

« Reply #9 on: February 11, 2012, 06:32:41 AM »

Hi Mike and another welcome wish to you...this one from the other side of the world...where more cool kids hang out.  The good 'ol USA.   :welcomesign;   

I am a care partner to my hubby who has been on D since 2007.  We have been through several modalities and are currently giving nocturnal in-center a try. 

Lots of great folks on this forum who will gladly answer questions, give advice, support and a few laughs too. 
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"The key to being patient is having something to do in the meantime" AU
monrein
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Might as well smile

« Reply #10 on: February 11, 2012, 06:35:17 AM »

 :welcomesign; to IHD. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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