Couple weeks in & already labeled!

MissRene12

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Couple weeks in & already labeled!

« on: January 27, 2012, 06:42:32 PM »

So my hon finally met with the hospital transplant team this week to have his evaluation and prepare for living donor testing, after months of misplaced paperwork, little communication and a couple of frantic phone calls from me. They told him I seemed "very assertive," and they were looking forward to meeting me. I think what they really wanted to say is, "where's that pain in the arse that keeps calling us??" but I'll wear it as a badge of honor. We're living and surviving well, and when it comes to his health, I will not be denied!! ;-P


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Fiancée of my hon, who has been living with CKD for more than 10 years. Our story:

- 2000: Hon hospitalized with renal failure. Stabilized and sent home.

<3 2003: Introduced through mutual friends following a comedy show.
<3 2003 - 2005: Became awesome friends.
<3 2005: FINALLY started dating - total goofy, silly love.
<3 March 2011: Engaged!

- 2 days later: Hon notified of dropping function, kidney or treatment needed in near future.
- Jan. 3, 2012: Hon's PD catheter placed.
- Jan. 17, 2012: Starting home PD training.

<3 Wedding plans in full force, driving towards our June 2012 date. I know this is dripping with cheese, but we do manage to have fun through this craziness.

MooseMom

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Re: Couple weeks in & already labeled!

« Reply #1 on: January 27, 2012, 10:52:40 PM »

You MUST be assertive, but you already know that! LOL! Good for you!


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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."

billybags

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Re: Couple weeks in & already labeled!

« Reply #2 on: January 28, 2012, 07:14:23 AM »

Good for you. You really need to fight your corner every time. He who shouts the loudest gets things done. I think that is it.


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willowtreewren

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My two beautifull granddaughters

Re: Couple weeks in & already labeled!

« Reply #3 on: January 28, 2012, 07:25:36 AM »

I hear ya! When my husband was listed, I'm sure they got "tired" of me!

I bugged them for two years, trying to get them to let me donate! And when another potential donor contacted me because the center hadn't contacted him, I was all over it! Even pulled in a friend who is a doctor in a different department at the same hospital. I'm sure they are glad they fianlly found a really good match for Carl. They don't have to deal with ME any more!

Do wear that badge with pride! You deserve it and it goes a long way toward helping your guy!

Aleta


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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.

looneytunes

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Wishin' I was Fishin'

Re: Couple weeks in & already labeled!

« Reply #4 on: January 30, 2012, 07:26:03 AM »

I have been correctly labeled "assertive" all of my adult life. In the case of being hubby's advocate, I'm proud to wear that label.

Sometimes, being assertive is mislabeled as "aggressive". I once read the difference between aggressive and assertive behaviour is that an aggressive person will often start a fight, win or lose; the payoff is the battle. The assertive person often does not look for a fight but won't back down until they win.

In most things, especially if it means getting better medical care, I think persistence pays off. Good on you for being the assertive one!


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"The key to being patient is having something to do in the meantime" AU

The Noob

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Re: Couple weeks in & already labeled!

« Reply #5 on: February 20, 2012, 08:04:21 PM »

couple calls, thats all? girlfriend, i called every day, every 30 mins, drug every doc dh had to the phone to call also when we were at their office..when at the hospital for something else, i was up at the transplant clinic raising cain and demanding the admin number.

he was listed december 1, 2011.

"don't make me have to come there"..(my comment)
"don't make my wife have to come there"..(dh comment)


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