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Author Topic: Binders  (Read 2946 times)
Whamo
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« on: November 20, 2011, 04:41:12 AM »

Do these actually work?  And how well?  Do you notice much of a difference in your labs?
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cattlekid
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« Reply #1 on: November 20, 2011, 05:23:41 AM »

I think it totally depends on a) how diligently you take them, b) which binder you are on for your personal situation and of course what you eat.   I am currently on generic PhosLo.  I've found that they aren't working so well any more but I also wasn't taking them diligently.  So I have clamped down on my diet and taken my binders religously.  It will be interesting to see how my labs turn out this month.  I have a sneaking suspicion I will be forced to go on a different binder that will be big bucks compared to the generic PhosLo, which is $10 for a 90 day supply with my insurance.
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Cordelia
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« Reply #2 on: November 20, 2011, 05:36:34 AM »

I'm on Renagel. I take 2 with my lunch and 4 with my supper.  I notice a big difference in my labs.
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Arcticat2000
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What. Me worry?

« Reply #3 on: November 20, 2011, 06:29:06 AM »

Yes binders do work. If the ones your taking aren't, ask your doctor to prescribe another. Phoslo did not work for me nearly as well as Renvela, which is what i take. My labs are fine, just make sure you take them anytime you eat.
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ESRD diagnosed June 2003
Dialysis begins July 2003
Nocturnal Dialysis since Aug.2005-present
3 nights per week @ 7hrs per session
Heart bypass surgery Nov.2007 w artificial valve
HILINE
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« Reply #4 on: November 20, 2011, 07:56:24 AM »

they work for me :2thumbsup;
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DonnaPaul
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« Reply #5 on: November 20, 2011, 08:07:46 AM »

They seem to work for Paul, he takes calcium acetate
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Restorer
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« Reply #6 on: November 20, 2011, 12:31:36 PM »

If I don't take binders every time I eat something with a significant amount of phosphorus, my phosphorus labs go up.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
sullidog
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« Reply #7 on: November 20, 2011, 07:08:10 PM »

renvella works for me.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #8 on: November 20, 2011, 07:37:31 PM »

I have NEVER, EVER takin ANY, not even one single binder in the ENTIRE time that I have been on dialysis..... and that is 8 months doing in-center Hemo and 6 months on CAPD. 

My Phos runs 3.3 -  4.2 (every single month)

my secret is that I do not eat ANY dairy at all!!! not even a sip of milk!!! other than that I eat whatever I want, when I want...... from hotdogs, (which are high is phos) to lunch meat (another one that is high in phos) now, I do not suggest that other people do ANY of this without first checking with their Nephs...... I am just lucky in this aspect of kidney failure!!!!  ;D
« Last Edit: November 20, 2011, 07:39:19 PM by tbarrett2533 » Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
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