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Author Topic: reintro please  (Read 3419 times)
Katonsdad
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« on: November 07, 2011, 11:55:46 AM »
I love thwwis sight, I have posted here before    I havve been in the hospital for
12 days qnd have just lost my transplant kidney. o very sad  and wondering what will happen next. Looking to do dialy. asoon as posible and will deal with it,  Just very annoyed and hurting inside.

katonsdad

Edited - Moved to Transplant Stories - Rerun, Moderator
« Last Edit: November 07, 2011, 01:58:16 PM by Rerun » Logged
Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
 purr purr purr ::
Sheldon and Penny on The Big Bng Theory
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #1 on: November 07, 2011, 01:22:49 PM »
You need lots and lots of hugs.....

 :grouphug; :grouphug; :grouphug; :grouphug;

I'm so sorry you lost your transplant. I know that must be hard to grapple with.  :cuddle;

When you say daily, are you thinking of doing NxStage?

More hugs....

 :grouphug; :grouphug; :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Rerun
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Going through life tied to a chair!
« Reply #2 on: November 07, 2011, 01:58:56 PM »
I'm so sorry you are losing your transplant.  Do they have to remove it? 
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jshabanian
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« Reply #3 on: November 07, 2011, 02:01:56 PM »
How long did you have your transplant?  I am so sorry you lost it.  Mine stopped working in Feb.  It is a bummer and makes me sad too.  Now I am struggling with the awfulness of dialysis.  I hope all works out well for you.
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jbeany
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Cattitude
« Reply #4 on: November 07, 2011, 08:03:28 PM »
 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: November 07, 2011, 08:41:10 PM »
 :( So sorry for your loss K - I hope you're doing ok.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kellyt
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« Reply #6 on: November 07, 2011, 10:33:40 PM »
Very sad news in deed.  I hope you're doing well.  I know being in the hospital is horrible and you can't wait to get home, but hang in there.  I'm sure someone here can maybe help you with the "what's next" question.  You're in my thoughts and prayers, katonsdad.   :cuddle;   :pray;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
monrein
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Might as well smile
« Reply #7 on: November 08, 2011, 04:26:13 AM »
So sad to read about this awful loss katonsdad.  It is a hard thing to cope with and takes time to do so so. In the meantime of course D has to be done and I hope you'll get sorted out very soon as to what kind, where and so on.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Poppylicious
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WWW
« Reply #8 on: November 08, 2011, 04:57:58 AM »
Awww, I'm so sorry Katonsdad.

*huggles*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
kevinswife
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« Reply #9 on: November 08, 2011, 05:44:29 AM »
I'm so sorry that you have to go through this again.  Please know that our little man and I are here to support you in any way we can.  We love you!  :cuddle;
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Wife and care partner to Katonsdad. 
May you rest in peace my dear husband.
cassandra
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When all else fails run in circles, shout loudly
« Reply #10 on: November 08, 2011, 08:35:49 AM »
Very sorry to hear that K. Good luck and keep strong
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cariad
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What's past is prologue
« Reply #11 on: November 08, 2011, 10:50:34 AM »
Oh, how devastating! I am so sorry.

Please continue to seek support here, we are all with you.  :grouphug;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Katonsdad
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« Reply #12 on: November 08, 2011, 11:58:49 AM »
 :shy;  Thankks for all the hugs and thoughts.  I an hoping to get on Capd again and get back to woek.
If ot will see what work will do with my available hrs, trying to stay upbeat to beat this monster.

Katonsdad
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Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
 purr purr purr ::
Sheldon and Penny on The Big Bng Theory
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