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Author Topic: Hi from Canada  (Read 1970 times)
Rain
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« on: November 06, 2011, 11:11:45 AM »
I've been around reading the forums for awhile, and posted a few days ago for the first time.

I've been on dialysis for 4 years.  In centre Hemo. (3 times a week).   I got diagnosed with renal failure at 23, but I've had kidney disease due to reflux since the age of 4. 

I work full time, dialysis part time and yet I find time for a life outside of it all.  My hobbies include cooking (now I'm takng some courses), photography, and fitness. 
I strongly believe that how you treat your body will help you feel better between treatments.  So  I eat very healthy, no process foods, and I exercise a bit every day. 

The only medication I am on is epo, and iron for my treatments. And thyroid medication for hypothyroid. I got off BP meds 3 years ago by following a fitness program.  I am currently looking at trying to heal my thyroid and get off the meds soon and so far for the last year my dosage has been decreasing every 8 weeks.  So I am on the right track.

I am on the list for a transplant. And just thinking about it give me anxiety.  I am just worried it's not going to work for me, since I've had bad luck when it came to finding a living donor. 
I look forward to being part of your family and learning a lot from others with the disease, just by reading some of the post I feel comfort in knowing I'm not the only one going through this at a young age.
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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
Cordelia
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« Reply #1 on: November 06, 2011, 11:21:18 AM »
Hi Rain, I'm from Ontario, Canada, welcome to you!      :welcomesign;    It's great to have you here with us      :grouphug;

Photography is awesome, I enjoy it as a hobby as well, hope you enjoy the site here!     :waving;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: November 06, 2011, 12:29:47 PM »
Welcome to IHD, Rain!

 :welcomesign;

I'm glad you found us. Now that you have de-lurked, post often so we can get to know you better.  :clap;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile
« Reply #3 on: November 06, 2011, 12:31:58 PM »
Hello from Toronto....this is a great forum and we look forward to you being a part of this community.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
lmunchkin
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"There Is No Place Like Home!"
« Reply #4 on: November 06, 2011, 02:05:36 PM »
Hi Rain & Welcome aboard!

lmunch
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Razman
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« Reply #5 on: November 06, 2011, 05:54:29 PM »
  Welcome aboard from another Canadian ( Mississauga, Ont ) .   You've found the best place to talk to others that understand.  It's great that you still have a life with hobbies and don't let dialysis rule it.   Please stay in touch.
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boswife
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us and fam easter 2013
« Reply #6 on: November 06, 2011, 07:18:17 PM »
welcome  :welcomesign;  hoping to see some of that photography in the near future :)  I love hearing of you taking care of your body and will love hearing more from you.. 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
bleija
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« Reply #7 on: November 06, 2011, 07:26:21 PM »
yup im here with ya on the young part, 21 now, been dealing with kidney failure and dialysis for 2 and a half years now... had 3 months of knowing my kidney failure before i had to chose my type of dialysis...
i am very impressed by the fact that u are on so few medications... i have supplements and high blood pressure meds basically the whole nine yards
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RichardMEL
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« Reply #8 on: November 07, 2011, 12:35:52 AM »
Dear Rain - hi and welcome to IHD!!!

I am going to POUR on your anxiety regarding transplant. I see it totally the other way to you (and that's easy because I'm 10,000 miles away and have a funny accent :) ). You already say you do as much as you can to keep your body in good shape - exercise, eating right etc.. This is SO IMPORTANT and you are doing yourself more good than you know - I am convinced of it.

I could not get a living donor myself - my siblings tested but didn't work out - not their fault of course. However, I kept hope up, and I exercised by walking where I could, My diet was not super awesome, but I kept my labs in order as much as I could and did my best to make sure when that call came that I would be in a decent situation to handle the transplant.

I'm 3 weeks away from my first kidneyversary! So far so good!

Yes, of course the anxiety that it may not work for you is a reasonable one - don't get me wrong, I was in the OR being prepped and had the same thoughts and wonders.. In the end though you put your trust in the team looking after you and in the universe. You're doing your part. The reality is that something like 93% of all transplants are still  working at 1 year. If you ask me that's a pretty darn awesome statistic, and given you're young and pretty healthy other than KD, that there's absolutely no reason to think it wouldn't work for you - and for a long time.

You've come this far! Try to stay positive and keep the faith. We all are on your side!

Again welcome !!

RichardMEL, Moderator
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Poppylicious
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« Reply #9 on: November 07, 2011, 05:01:20 AM »
 :welcomesign; Rain!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Ang
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« Reply #10 on: November 07, 2011, 03:31:49 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
Rain
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« Reply #11 on: November 08, 2011, 04:08:23 AM »
Thanks everyone.

I've stopped lurking on the boards and am now contributing. Woohoo

The other supplements I'm on are Replavite (Vitamins) and a probiotic pill. 

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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
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