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Mizzou

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Hello

« on: November 02, 2011, 09:20:33 PM »

I have been dealing with my kidney disease for 17 years. Just this past March while on a trip with my family I was unable to catch my breath. When we returned home I went to the doctor thinking I had walking phenomia. I was then advised that my heart was enlarged and I needed to see a cardiologist. The Cardiologist did an EKG and blood work and found out that my heart and kidneys were both in failure. I was immediately place in the hospital for a week with kidney and heart failuare.

I have only been on dialysis for 2 months but that is 2 months too much. I really miss the time that has been taken away from spending with my family. I have misss out on some many of my son's events that I feel like a bad mother. I'm always so tired that I feel like I am neglecting my husband. I never thought at 47 I would be dealing with dialysis.

But my light at the end of the tunnel is that I was officially placed on the transplant list last Thursday.


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YLGuy

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Re: Hello

« Reply #1 on: November 02, 2011, 09:31:21 PM »

I thought I had walking pneumonia and was told at the ER that I was stage 5, end stage renal failure. I was 46. I am a single dad of 3. I am glad you found IHD. There is a lot of good information here as well as some very good support.


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MooseMom

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Re: Hello

« Reply #2 on: November 02, 2011, 09:53:53 PM »

Being placed on the waiting list is a huge accomplishment, especially if your heart had been compromised, so congratulations on that! That's wonderful news and it IS a light at the end of the tunnel. Is there anyone in your circle of family or friends that might be a donor?

As for being a bad mother, I doubt your son thinks that. Please don't add to your emotional burden by placing unfounded guilt on your shoulders. How old is he?

Welcome to IHD, and I hope you find plenty of support here.


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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."

Traveller1947

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Re: Hello

« Reply #3 on: November 03, 2011, 06:49:51 AM »

Hi, Missou! This is a difficult journey we're on--there's no doubt about that. That you're already on the transplant list is a great step forward. Meanwhile, you'll find lots of support here.


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willowtreewren

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My two beautifull granddaughters

Re: Hello

« Reply #4 on: November 03, 2011, 07:09:48 AM »

to IHD!

I so agree with MooseMom! Do what you can and forgive yourself (because I'm sure your son does) for what you can't do.

You'll find so much helpful information here and many, many supportive folks!

Aleta


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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.

Rerun

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Re: Hello

« Reply #5 on: November 03, 2011, 07:24:18 AM »

Hi Mizzou, and welcome to IHD. Where abouts do you live? So how is your heart now that you are on dialysis and getting the fluid off?

I'm so glad you found us.

Lots of great information on here plus a few laughs. As we need those too.

Rerun, Moderator


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lmunchkin

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Re: Hello

« Reply #6 on: November 03, 2011, 09:02:48 AM »

Welcome to IHD, Missou. You will find lots of support here! You are not alone, but know that it can be made better!

lmunchkin


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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present. NxStage at home

Poppylicious

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Re: Hello

« Reply #7 on: November 03, 2011, 11:42:08 AM »

Mizzou!


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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.

carldog

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Re: Hello

« Reply #8 on: November 04, 2011, 05:55:59 PM »

I also had symptons like yours, but i thought i was having a heart-attack.That was back in june .I was told i have ESRD 9(stage5) i have been on dialysis since,3 times a week 4hrs at a time.I am 49 yrs. old and thought my life was over but I was wrong it is a new begining.you will be fine,it won,t be easy but you have a choice.BE STRONG!! . Carldog.


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bleija

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Re: Hello

« Reply #9 on: November 04, 2011, 07:55:03 PM »

i never thought at 19 i would be deciding on which type of dialysis i would have to have, and the idea of transplant was surreal. now 2 and a half years later i am still trying to get on the transplant list. i started trying in orlando, but couldnt ever get ahold of the financil coordinator and felt like i was at a dead end, started in gainesville in March of this year, and the only thing holding me back is the 3 grand they want me to have. which hopefully by Jan i will have that


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Ang

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Re: Hello

« Reply #10 on: November 07, 2011, 03:34:54 PM »


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live life to the full and you won't die wondering

CebuShan

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Re: Hello

« Reply #11 on: November 07, 2011, 03:46:29 PM »

Mizzou! Don't worry about being a "bad" Mom; I'm sure your son is grateful that he still has you! You'll find lots of love, support, hugs and shoulders to cry on here. I'm happy to meet you!