How to pay for life-long immunosuppressants

[monrein]

Pretty much every day I'm grateful for our medical system Pelagia.  I think of it and my donors almost every day and thank my lucky stars.

[okarol]

I worry about other young people who lose coverage at 3 years post-transplant. It's an issue that still has not been resolved.
We have coverage still, but others are not so lucky. Hopefully having pre-existing conditions removed with the healthcare bill will allow people to purchase policies (for a reasonable amount.)

[rsudock]

I know I said it before on other post but I will say it again! Jenna is so lucky to have parents that are so involved in her healthcare!! Fighting for her and helping her. When I was graduating from college worried sick about how I was going to afford to pay for my health insurance my mother couldn't even give two rips that I was really in a tight bind. It wasn't her job to help me! Thank goodness everyday for caregivers who do care and sacrifice their own time to help their loves ones!! Thankfully I have a boyfriend who has stepped in to help me....

Great advice on here!!

xo,
R

[okarol]

Supposedly anyone who gets a transplant now would be ok 3 years from now as the healthcare bill prohibits insurance companies from excluding patients due to a pre-existing condition. But no one says how much the health insurance will be, or what will happen if you cannot find employment or can't afford the premiums.

[The Noob]

we wonder about this too. hubby was terminated from his employer of 26 yrs after 12 months of medical leave. he has medicare and NKF is paying the cobra, i think there was issue about it being 1 yr or 29 months?
so he gets a transplant soon, which is looking very likely, then what? he has a family member who's offered to get him a state job if we move there (which we would love to do). he'd never find work here, very depressed area.
what would you do?

[MooseMom]

What has the social worker at the transplant center had to say?  They won't list/transplant anyone unless they are satisfied that the patient's post-tx drugs can be paid for.

[okarol]

What has the social worker at the transplant center had to say?  They won't list/transplant anyone unless they are satisfied that the patient's post-tx drugs can be paid for.

Yes, if you cannot show a long term plan they can deny your being wait listed.