Does anyone else have this problem?

[Brightsky69]

Next week (Oct. 19) my 2nd transplant will be one years old!!   

I have an issue with stiffness in my ankles/feet and sometimes knees. It’s getting to be slightly painful to walk. I always feel like my legs will give out or something. (but they never do) However…there is no pain what so ever. Just a sort of weakness/stiffness when I try to walk. It’s more annoying than anything. I also found that if I take a couple of Excedrin then I have no problems at all. All the stiffness is gone.
I wonder if it’s related to my anemia.

[Chris]

The stiffness in the ankles and feet started earlier this year for me, but my knees have been that way for a few years now. I am taking meds for it now from a rhuematologist for arthritis. I was tested for Rhuematoid Arthritis, but blood work did not show it was that. I would bring it up with your transplant center who may refer you to a rhuematologist who has experience with transplant patients. It could be something else.

[Brightsky69]

I have clinic next week...I will let them know. I did see a rhuematologist while I was on dialysis and he found nothing. He did find some fluid on my right knee....other than that he said I was fine. I figured it was a dialysis problem. But now a year after transplant...getting the weakness again. Although not as bad as when I was on dialysis.

[Sax-O-Trix]

First, congratulations on your pending 1 year anniversary!  It's a significant one for sure!

I just realized that I have not had my extremely painful foot/heel pain since my transplant (too many other things to worry about in my recovery and stressed-out every day life).  There had been hundreds of times over the past few years that I couldn't even walk w/o wanting to cry because the pain in my feet/heels.  I just figured I had plantar fasciitis that was probably aggravated by uremia (never dx, but that's my theory). 

Hopefully your doctors can come up with an accurate dx for you.  Are you allowed to take Excedrin?  I am not allowed to take any aspirin or nsaid products post transplant.

[billybags]

Ask to see a neurologist to see if your electrics are working. Apparently my husbands signals from his brain are not getting through to his legs. He had to have a lumber puncture last week, we are waiting for the results and this is down to dialysis. Just a thought.

[Chris]

Ask to see a neurologist to see if your electrics are working. Apparently my husbands signals from his brain are not getting through to his legs. He had to have a lumber puncture last week, we are waiting for the results and this is down to dialysis. Just a thought.

I hated that test! When they did the EMG on the leg it wasn't bad, but when they moved to the spine, OH CRAPOLA! Not just pain, but being scrunched into a ball and twisted along with a few student doctors in the room just was not a pleasant situation. I will not even try acupuncture after that. Not a fan of little needles being stuck into my back or really the legs.
 
Soooo what I'm saying is your experience maybe different from mine.

[billybags]

Chris, what was your out come? Yes my husband was the same, scrunched up in a fetal position, I was so glad he did not have cabbage the night before. Lol

[Brightsky69]

You know...the stiffness really seems to be in my ankles. Hummm.... And when I sit for long periods the stiffness is bad. Maybe I am getting old. 

Sax - they told me Excredrin was ok to to take. They made sure to tell me to stay away from Advil, said ibuprofen type stuff was a big no no.

[Poppylicious]

I won't be about next week so sending you early Happy Kidneyversary Greetings for Wednesday!

 

(sorry that I can't help with the stiffness issue.)

[Brightsky69]

    Thank you Poppy!

[Chris]

Chris, what was your out come? Yes my husband was the same, scrunched up in a fetal position, I was so glad he did not have cabbage the night before. Lol

Just what I have been telling them all along that since I was a kid, I have neuropathy from diabetes.