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Author Topic: Occasional pain in the transplant  (Read 1949 times)
natnnnat
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« on: October 19, 2011, 08:17:07 PM »

From time to time Gregory gets a pain in the transplant.  He had it last night.  He says its like, a stomach ache, but in the kidney.  He says its telling him something - be good, I replied, if it were more eloquent or specific.  He said, grimacing, that it happens sometimes and he wasn't worried.  "I'll sleep and it should be alright in the morning", he said.  Often he relates it to drinking diet coke.


 :Kit n Stik;

Sure enough, today he is fine.  Thought I'd put this down here so that people, if they have pains in their transplant, can confer.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
cariad
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« Reply #1 on: October 19, 2011, 08:49:59 PM »

Oh yes, I've had this my entire life, and get it now with the second transplant. Gwyn says he gets pain in his kidneys when he's dehydrated, and that that is probably the issue. I try to drink more when I get those pains and I think it does help. For me, they are not very often and it only lasts a short while without being all that severe, so I just ignore it. I tend to drink a diet Coke a day and have not noticed a correlation for me.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
natnnnat
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« Reply #2 on: October 20, 2011, 05:56:54 AM »

Well I take back the baseball-bat-hitty-thing then, if you drink dc too.

I told Gregory about your comments, and he connected it to how he has been weeing a LOT lately.  So maybe it was dehydration.  I sent him off to the kitchen for some water on the spot.  And we theorised that if he drinks a bit each time he wees, he might keep up with the fluids.

Just goes to show you can still find food for thought, even an oldtimer like him.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
cariad
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Posts: 4208


What's past is prologue

« Reply #3 on: October 23, 2011, 07:43:58 PM »

I don't think diet Coke is good for anyone, so we should all really give it up. With me, I don't really like coffee (every once in a while) and most teas have a very low caffeine rate. (I don't drink Yerba Mate because it requires sugar to be edible, and I do not like sugared teas.) diet Coke wakes me up better than teas do, and some days I just need that boost. I don't even like the taste that much anymore. I went through long stretches at prep school and university where I would drink a six pack a day, easy. Who knows, maybe there is some magic ingredient that actually contributes to transplant longevity. Wouldn't that be cool? (Especially if I could buy stock in Coke before the findings were announced?)

I also get the odd spasm in the kidney, but I ignore that, too. It hasn't happened in probably a year, and I put it down to the new kidney becoming acclimated to a new environment.

I really hope the increased fluids help. I am almost positive that I remember reading that Gregory recently had a remarkably low creatinine! Great news. It would seem that he is doing something right, so maybe the diet Coke is not such a big deal. Long may the stellar labs continue!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
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