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Author Topic: Time in the hospital  (Read 3476 times)
Loretta
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« on: June 13, 2008, 07:50:36 PM »

I have had a bad time lately.  I had surgery to remove my right kidney and urethra due to complications with cancer and numerous infections.  I had the surgery on April 24th and didn't wake up until April 30th.  I was kept in a comma because of blood clots and having to have tubes down my throat to breath.

The Dr can not explain what happened.  Some think my INR was too low and caused the blood clots and breathing problems.  Others say it just happened and wasn't "caused" by anything.

I spent a total of 19 days in the hospital.  One of the major problems I had was a dialysis access.  I have a failed fistula and graph.  and I had a permacath in my chest that had clotted off. They finally put an access in my leg,  and after some adjustments I finally got dialysis after not having it for almost a week.

8 days after I got home from the hospital I developed a fever that kept climbing. Over afternoons and evenings and would go away in the morning. after three days of that,  I  waited until morning and went to the hospital.  I knew the infection was in my catheter and leg.  They couldn't get any positive cultures.  So they sent me home in a week.

  That evening I noticed the bandage started showing drainage.  I knew I would have to go back but my daughter needed me at home so I put it off.  I spent one day at home and then when I went to dialysis.  The refused to dialys me and again sent me to the ER.  After another week in the hospital and a week at home on two different antibiotics it feels like the infection is clearing.

My daughter was diagnosed with Mono.  I have started having the same symptoms.    The worst part is a stomach ache.  This isn't normally a major symptom, but it has been for my daughter.  I also have a bad headache part of which is pressure behind my eyes and the fatigue!  I have an appointment on Tuesday and hopefully the Dr will order a test to test for Mono.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: June 13, 2008, 08:15:50 PM »


Hi Loretta, It sounds just awful, what you've experienced. I am so sorry you've had to endure all of this.
I hope you don't get mono and can recover from the infection.
 :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sunny
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Sunny

« Reply #2 on: June 13, 2008, 09:20:19 PM »

Loretta,
You have been having it very rough indeed! I'm so sorry things haven't been going well for you recently.
I figure maybe things can only get better from here. Having Mono on top of everything else sounds difficult.
I hope things get better for you soon and that the doctors get it all figured out. Wishing you the best.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Rerun
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Going through life tied to a chair!

« Reply #3 on: June 13, 2008, 09:28:14 PM »

Wouldn't it just be easier to die sometimes?  WOW you made it through.  You stomach could be nerves.  The last thing you need is mono.  You and your daughter need your rest.
I hope you have help from someone.  If not you tell your Social Worker you need some help.
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rose1999
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« Reply #4 on: June 13, 2008, 10:43:31 PM »

Oh Loretta, you've had a dreadful time, I hope the antibiotics will clear things up  and you will soon be well again.  :cuddle;
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twirl
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« Reply #5 on: June 14, 2008, 07:53:27 AM »

you have to get better,
my son had mono and he is a big, strong footballer and it get got him down for awhile
so sorry about this time for you
things have to get better
you will see
I know it is easy for me to say
but you will
with mono, you will have some days you are very tired ahead of you
you will be in my thoughts
twirl
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monrein
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« Reply #6 on: June 14, 2008, 09:30:05 AM »

Loretta, what an awful time you've had.  I do hope you'll be out of this mess soon and the mono gets resolved too.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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