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Author Topic: New Member - J-D of Burlington, Ontario, Canada  (Read 1954 times)
J-D
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« on: August 28, 2011, 09:11:39 AM »

Hi everyone!

This is J-D, a new member of this forum. CKD 8 years. According to my doctors, I probably got kidney failure due to pre-eclampisa 9 years ago when I had my first daughter. I will be starting PD soon, scheduled to have a cath inserted tomorrow.  As many of us here, I have  joined the forum so I can "talk" to people who really understand what I am going through as nobody understands you unless they are on the same shoe as yours.

Hope to meet and be friends with everyone of you!

Thanks and talk to you soon.

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monrein
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Might as well smile

« Reply #1 on: August 28, 2011, 10:28:17 AM »

 :welcomesign;  to IHD.    I'm from Toronto.  I think you'll find this site very helpful and I wish you luck for tomorrow's cath insertion.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #2 on: August 28, 2011, 10:49:56 AM »

Hi, J-D!

 :welcomesign;

I'm glad you found IHD! Not glad that you NEEDED to, though!

Good luck tomorrow.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Cordelia
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« Reply #3 on: August 28, 2011, 11:00:46 AM »

Welcome! I'm from SW Ontario, too! Hope you enjoy the site!    :welcomesign;   :canadaflag;

I had pre-eclampsia with all my pregnancies too, I know how you feel    :grouphug;
« Last Edit: August 28, 2011, 11:02:01 AM by Cordelia » Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
J-D
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« Reply #4 on: August 28, 2011, 11:04:33 AM »

Thank you for the warm welcome. Just started taking my Go-lytely solution. Tastes awful! Can't imagine drinking all the 4 liters! Anyone who can share how the PD cath insertion goes? Experences please. Thanks!
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Razman
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« Reply #5 on: August 28, 2011, 01:08:57 PM »

  Hello from another Canadian (Mississauga) .  Its great that you joined.  This is the best place to talk to others that really understand the situation.  I hope that you will visit often.
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J-D
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« Reply #6 on: August 28, 2011, 04:00:49 PM »

Oh, i decided to re-post my question to the other section (pre-dialysis). Since I notice this section is for intro only  :)

Just adding details on my case:

My creatinine to date is 630 (last week), pottasium, phos, calcium normal, PTH normal, no edema, no nausea. But I am anemic with Hgb 91 m/mmol Still my nephro doc recommended me to start dialysing. So have to do the PD cath insertion tomorrow.

I am supposed to have a transplant but they can't give me a date yet (my husband will be my donor)  because apparently to them I have a "compliance issue". :( This started when I missed one appointment because the appointment letter had a wrong zip code and therefore I did not receive it. The other was a miscommuication withe my GP because of the varicella vaccine issue. This was what happended. The transplant team sent a letter to my GP for me to have a varicella vaccine shot which they said I needed prior in March 2011. My GP, on the other hand, made varicella vaccine test on me which I did and came back negative. When transplant team followed up with me, I said I am still waiting for GP's orders for the vaccine. Transplant team said they sent my GP a letter saying it is negative therefore I need to have a vaccine. So I went back to my GP asking for vaccine. The GP doesn't have it. No pharmacy has it. And the search for the vaccine went for at least 2 weeks. So to cut the story short I had the vaccine June 25th the first dose and July 25th second dose. Now the transplant team has attributed this whole bruhaha as non-compliance and therefore is not giving any transplant date. Latest update is that they are still waiting for a letter from my GP that I have completed the vaccines. And now while waiting for them to  "re-assess my compliance" my nephro doc will start me on PD. I will get my PD cath tomorrorow.

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lmunchkin
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"There Is No Place Like Home!"

« Reply #7 on: August 28, 2011, 09:14:17 PM »

If I recall, it wasnt that bad when hubby had his put in back in 2004. He is a tough old bird and tolerates pain pretty well.  Especially this pain in the "butt- Me!!".

Seriously though, it was a fairly easy procedure for him.  Everyone is different!

lmunchkin    :kickstart; 

P.S. By the way, Welcome!
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Ang
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« Reply #8 on: September 03, 2011, 02:41:25 AM »

 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
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