Where is Des??

Desert Dancer

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Where is Des??

« on: August 22, 2011, 01:20:34 PM »

Her last post was August 3rd and nothing since. Does anyone know if she's all right? It's especially concerning knowing how very difficult everything has been for her.


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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.

MooseMom

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Re: Where is Des??

« Reply #1 on: August 22, 2011, 01:23:41 PM »

I've been wondering the same thing. I keep looking out for her but haven't seen any recent posts. You're right...she's really been through some tough times lately. She was SO counting on that transplant and then everything went pearshaped. Hope can be a dangerous thing. Still, I HOPE she's OK.


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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."

okarol

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Photo is Jenna - after Disneyland - 1988

Re: Where is Des??

« Reply #2 on: August 22, 2011, 01:27:24 PM »

She's active on facebook. Maybe send her a PM?


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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU

RichardMEL

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Re: Where is Des??

« Reply #3 on: August 22, 2011, 07:26:14 PM »

seems she's not the only one who's "taking a break" from IHD but active on fb lately - for whatever reasons. At least if they're active on facebook we know they're reasonably OK. Thanks for letting us know that.


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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions

27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!

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