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Author Topic: Just an update - doing very well.  (Read 11891 times)
Des
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« on: October 27, 2011, 10:35:02 AM »
Hi
All you lovely people !
I have not been here in a while.

I have been HAPPY ! Yes very happy! :cheer:

I've been too busy living my life and less talking about it.
I feel relatively well.
Going for another "small" operation towards end Nov. (all my operations start small and then explode into something serious)
Oh and I am in love again - same husband - after 22 years : you can say it : aaaaaahhhhhh
I didn't think I can love him more than I already do - but it has happened.
Yes, he has been my hero and more. :guitar:
Made a new and dear friend on IHD (Isabella13) She has been my rock!
We plan to meet very soon.

Just know I am doing very well.

Lots of love

D
 
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
monrein
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Might as well smile
« Reply #1 on: October 27, 2011, 10:49:04 AM »
What a great post to read Des.  So delighted that life is good and you're feeling happy.   :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
cariad
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What's past is prologue
« Reply #2 on: October 27, 2011, 10:52:15 AM »
Excellent news, Des! So glad to hear this!

They say "living well is the best revenge". Way to show kidney failure who's in charge!

New friends, and falling deeper into love with existent friends - two of life's greatest offerings.

Keep enjoying yourself!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
MooseMom
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« Reply #3 on: October 27, 2011, 10:55:36 AM »
What an uplifting post from our Des!  Thanks so much for posting again at IHD; I'm not on Facebook and so appreciate it when you post here on this forum so that I can keep tabs on you. :rofl;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
RichardMEL
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« Reply #4 on: October 27, 2011, 05:38:34 PM »
Great to hear Des - you're doing exactly what I advocate - living life to the fullest and not letting the disease take over. Very well done!! So I understand you not being on here much, but by the same token we all love to hear that you are going along ok - so thank you very much for the update and sharing!!

 :2thumbsup; :yahoo; :2thumbsup; :yahoo;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #5 on: October 27, 2011, 06:06:29 PM »
Des.....  Makes me happy.... very happy to hear ....    there is more to life than dialysis.... and health issues.....

   stay busy   and most of all  stay happy......     :flower;
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #6 on: October 27, 2011, 06:09:48 PM »
Oh, Des,

This surely warms the cockles of my heart!  :cuddle;

I've had some other very sad news recently and nothing sounds better right now than the lilt in your voice and the love in your heart.

I'm so happy for you. And may that small operation stay small and minor!  :pray;

Love to you.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
boswife
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us and fam easter 2013
« Reply #7 on: October 27, 2011, 07:28:20 PM »
Wasnt this just the best ever post :)  So good to hear from you and yes.... the "lilt" in yur voice is very uplifting...  Im so happy for you and you made us all happy with your happness ..  Thanks for poppen in to share... ANd YES...  Awwwwwwwwww   ;D
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Ang
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« Reply #8 on: October 28, 2011, 12:50:26 AM »
 :2thumbsup; :thumbup; :2thumbsup;
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live  life  to  the  full  and you won't  die  wondering
natnnnat
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WWW
« Reply #9 on: October 28, 2011, 02:52:50 AM »
Yes, this is the best ever post.   :cuddle;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Rerun
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Going through life tied to a chair!
« Reply #10 on: October 28, 2011, 09:48:43 AM »
Des, I'm so glas you checked in with us.  Keep up the good work.  I'm happy for you.    :waving;

Rerun
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Big E
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« Reply #11 on: October 28, 2011, 10:55:35 AM »
Such a nice positive post!  Thank you Des.
 :)
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
lmunchkin
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"There Is No Place Like Home!"
« Reply #12 on: October 28, 2011, 07:55:47 PM »
Good to hear from you Des.  I too do not do facebook, but was glad to see a post from you and obviously doing very well.  So happy for you and your new friend Isabella13.  Funny thing is, she feels the same as you!!  Arent Friendships Great?

Again, Good to hear from you,
lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Jean
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« Reply #13 on: October 29, 2011, 12:48:32 AM »
What an uplifting post Des, thanks and I am happy for you!!
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One day at a time, thats all I can do.
billybags
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« Reply #14 on: October 29, 2011, 06:58:46 AM »
Des you sound so happy,it really came through in your post, long may it continue.
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