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Author Topic: Persistence  (Read 1835 times)
Comeback Kid(ney)
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« on: August 13, 2011, 05:26:47 AM »

I wanted to relate a story to the community that I bet each one of you can relate to. A year and a half ago, as a PD patient I developed a peritoneal infection and because I was so lucky to have it fall on a sunday, my clinic was closed and I had to go the hospital. What should have taken an hour or two to administer the antibiotic took 9 hours. I was in pain and nobody at the hospital knew how to treat a PD patient. My nephrologist at the time said that there was a dehumaization that goes on in these emergency rooms. This got me enraged and I called on a state agency to investigate. Nine months later and a lot of aggravation later, the final result was sent to me and the hospital got a slap on the wrist. The state of CT knew I was mad and much to my surprise, they reopened the case and made unannounced visits to the hospital for the last year and lo and behold yesterday I received in the mail a 50+ page document from the state with a bastion of improprieties that the hospital was conducting. In other words, by being persistent, I made the state open Pandora"s Box and the rat came out of its hole. My advocate wants me to make this a local story but I have begun the process of turning this into a national one. So, between the lawsuit I have going now with my second clinic I was at and now this which took place with my first clinic, I do not think I will be getting invited to any cookouts from the medical world. The bottom line is I have had enough of the corruption and I am a seeker for TRUTH and JUSTICE. Never give up!!!
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billybags
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« Reply #1 on: August 13, 2011, 05:30:36 AM »

Good of you!
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willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: August 13, 2011, 06:07:28 AM »

 :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #3 on: August 13, 2011, 04:25:25 PM »

 :thumbup;   :2thumbsup;

THank you for helping the renal community and sick people everywhere!
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Riki
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« Reply #4 on: August 13, 2011, 08:27:25 PM »

That is friggin awesome.  When I got peritonitis, the hospital refused to listen to me.  I knew exactly what the problem was, but they kept dismissing me, trying to tell me that I had anything else but peritonitis.  I went 3 days, being told I had gallstones, before the testing came back saying I was right, and in that time, I could have been receiving antibiotics to fight the infection, but I wasn't.  I think that may have been a contributing factor as to why I'm on hemo now.  That, and one nurse's negligence, and another going with odds (I had a clear bag, so she didn't test it, but I was still infected).
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
sullidog
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« Reply #5 on: August 14, 2011, 06:32:28 PM »

I have started being the same way, you gotta do what ya gotta do sometimes!
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Ang
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« Reply #6 on: August 14, 2011, 08:09:10 PM »

hope you get the outcome that you want :clap;
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live  life  to  the  full  and you won't  die  wondering
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