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Author Topic: My kidney got into Yale!  (Read 13126 times)
lawphi
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« on: May 23, 2011, 09:43:18 AM »
I found out today that my kidney will be sent to Yale as part of a paired exchange program.  I am thinking of making a t shirt. 
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Girl meets boy with transplant, falls in love and then micromanages her way through the transplant and dialysis industry. Three years, two transplant centers and one NxStage machine later, boy gets a kidney at Johns Hopkins through a paired exchange two months after evaluation.  Donated kidney in June and went back to work after ten days.
HouseOfDialysis
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« Reply #1 on: May 23, 2011, 10:01:07 AM »
It's the Ivy League!
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
galvo
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« Reply #2 on: May 23, 2011, 07:35:15 PM »
Cool!
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Galvo
carol1987
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« Reply #3 on: May 23, 2011, 07:49:52 PM »
ahh An educated Kidney!   LOL   :clap; :clap; :clap;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
okarol
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« Reply #4 on: May 23, 2011, 07:54:40 PM »
 :rofl; That's great!  :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Marina
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God Bless my donor family!! :)
« Reply #5 on: May 26, 2011, 11:52:43 PM »
Quote from: lawphi on May 23, 2011, 09:43:18 AM
I found out today that my kidney will be sent to Yale as part of a paired exchange program.  I am thinking of making a t shirt.

      :2thumbsup;    :yahoo;
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"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

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 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
texasstyle
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« Reply #6 on: May 27, 2011, 04:07:47 AM »
That is one smart kiidney! Did it make the Dean'sl list? lol  I'm not quite sure what the paired exchange program is. i thought tha had something to do with donor's on a waiting list. Anyway, how many other people can say this? lol
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caregiver to husband using in-center dialysis 4 years
lawphi
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« Reply #7 on: May 28, 2011, 03:22:27 PM »
http://www.hopkinsmedicine.org/transplant/Programs/InKTP/kidneypaireddonation.html

Above is a good link on the program we used to find my husband's kidney.  I was a bad match for him.  My donation was able to be delayed due to the chain being complete.

The matches are based on a formula similar to the cadaver list.  You get points for length of time on the run, the antigens matched, a double HLA DR match and PRA.  I believe points are allocated if the donors are around the same age as well. 

I will also know the demographics of my donor, but want to wait to closer to the surgery so that I do not get attached.
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Girl meets boy with transplant, falls in love and then micromanages her way through the transplant and dialysis industry. Three years, two transplant centers and one NxStage machine later, boy gets a kidney at Johns Hopkins through a paired exchange two months after evaluation.  Donated kidney in June and went back to work after ten days.
lawphi
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« Reply #8 on: June 14, 2011, 05:11:18 AM »
Well, once a kidney bitty wife, always a kidney bitty wife.  I got to micromanaged Yale yesterday.  They did not send a seven day crossmatch to be completed.  I called my coordinator, figured the specific number of tubes, called my bffs at our local lab and wrote out my own fed ex package to get my blood to Yale for my Recipient. 

I found out that my donor is a 63 year old man who had numerous crossmatches to his friends and family.  He has not reacted to me, but there is a small chance he would crossmatch.   He works full time still. 

I had some mixed emotions regarding his age, but realized I was projecting my own normal surgical fears.  Besides 60 is the new 40.
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Girl meets boy with transplant, falls in love and then micromanages her way through the transplant and dialysis industry. Three years, two transplant centers and one NxStage machine later, boy gets a kidney at Johns Hopkins through a paired exchange two months after evaluation.  Donated kidney in June and went back to work after ten days.
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« Reply #9 on: June 14, 2011, 05:23:49 AM »
You bet 60 is the new 40!  :rofl; :rofl; :rofl; :rofl;

Carl is 63, too! And still working like a horse! Of course we are going to cut our hours back from 10/day to 7/day. It will feel like retirement!

 :clap;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lawphi
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« Reply #10 on: June 16, 2011, 06:29:51 PM »
Due to lab corp losing my Hep C PRA from last week, my surgery might be off.  Not sure I can go through this again.
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Girl meets boy with transplant, falls in love and then micromanages her way through the transplant and dialysis industry. Three years, two transplant centers and one NxStage machine later, boy gets a kidney at Johns Hopkins through a paired exchange two months after evaluation.  Donated kidney in June and went back to work after ten days.
okarol
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« Reply #11 on: June 17, 2011, 07:11:15 PM »
 :banghead;
Hang in there!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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