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Author Topic: Introduction to Sonarman2  (Read 3041 times)
Sonarman2
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« on: July 27, 2011, 08:58:22 AM »
I'm a liver transplant patient with diabetes and failing kidneys. I'm on PD and I hate it. I do hope to learn some coping skills from you all. I'm 72 and male. Hello and I hope to hear from some of you soon. Thanks, Sonarman2
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MooseMom
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« Reply #1 on: July 27, 2011, 09:11:18 AM »
Oh my...your life is filled with all sorts of health issues!  There are quite a few people here on PD, and I'm sure they will be happy to share some of their coping skills with you.  I think the only one that works is "take it one day at a time" and "find pleasure where you can."  There is nothing easy about dialysis, and coping with it is like coping with any pain in life that's probably never going to go away.  Sometimes just acknowledging your sadness and coming here to share it with us can help.

I'm glad you have come to this site, and I hope you will find us informative and, at time, entertaining enough to serve as an occasional distraction.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Rerun
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« Reply #2 on: July 28, 2011, 07:39:26 AM »
Hello Sonarman2, and welcome to IHD.  I do believe we have a few members that have liver and kidney transplants.  PD would suck if you are already dealing with liver.  I wonder if you get a kidney transplant if you will have to be on more drugs than you are already on for liver.  Transplant drugs are transplant drugs aren't they?  I hope you find support here.  I think PD is better than hemo because with hemo you have huge needles and I hate needles even small ones.  Best of luck with your liver transplant.   :thumbup;

Rerun, Moderator   :welcomesign;
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willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: July 28, 2011, 12:41:57 PM »
 :welcomesign;

This is a good place for support and information. I'm just sorry you needed to be here.  :'(

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Ang
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« Reply #4 on: July 28, 2011, 08:10:38 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
jbeany
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« Reply #5 on: July 28, 2011, 10:09:20 PM »
Welcome sonarman!

So, the obvious question with that handle - were you in the Navy?  On subs?

Hopefully you can find some ideas that will help with the PD.  Plus, you can always come on here and vent about it to people who truly understand why you want to complain - and that can be incredibly helpful sometimes!

jbeany, Moderator
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
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« Reply #6 on: July 30, 2011, 09:49:57 AM »
 :bump;
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jemmans
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« Reply #7 on: July 30, 2011, 02:23:51 PM »
''' I'm on PD and I hate it. '''

Can you tell me why you hate it so much? Thanks
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Sonarman2
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« Reply #8 on: August 04, 2011, 03:29:38 PM »
Since I'm so new to the site I don't know how to respond to an individual but I'd like to thank those who looked in on my introduction and chose to leave their calling card and a note. Jbeany, yes, I was in the navy but not on a sub. I was on a sub hunter (look out below).
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jagermiester
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« Reply #9 on: August 04, 2011, 04:13:21 PM »
I too am new to this site.  I have done nothing but read and read and read.  There is a lot of information here that has helped me a whole lot.  Hope it helps you to!  :welcomesign;
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Sonarman2
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« Reply #10 on: August 04, 2011, 04:30:26 PM »
Quote from: jemmans on July 30, 2011, 02:23:51 PM
''' I'm on PD and I hate it. '''

Can you tell me why you hate it so much? Thanks
It seems to occupy my entire day seven days a week...forever! Right now I just feel trapped. And this site...I don't know what I'm doing so I just wander from place to place. I do get in some reading along the way and that has helped a lot. As I read this over, it's a real downer, sorry about that. Thanks he mans, S2
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lmunchkin
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"There Is No Place Like Home!"
« Reply #11 on: August 04, 2011, 04:42:30 PM »
Yeap,S2,  dialysis in any form, can be life changing!  But once you get in a groove and you find the modality that is comfy for YOU, then it becomes a part of daily activities! But realizing that it has to be done!
May I ask you are you married?  If not is there anyone who is with you through all this?  It does help to have a significant other to help, but there are "many" on  here that are alone and could help you cope with it from their experiences!

At least you know how to pull up a quote, which I still don't know how!!!!!!  lol     :flower;

lmunchkin     :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
jbeany
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« Reply #12 on: August 04, 2011, 06:45:33 PM »
Quote from: Sonarman2 on August 04, 2011, 03:29:38 PM
Jbeany, yes, I was in the navy but not on a sub. I was on a sub hunter (look out below).

Very cool!   :2thumbsup;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #13 on: August 05, 2011, 08:34:41 AM »
Like I tell everyone.... read, re-read and read again then post your questions and use this website as a support and resource..... Just knowing that I have this site as a support is what keeps me going some days  :bow; 

I am 31 years old and on PD (new only been doing it for one week) and I can tell you this...... you don't wanna be on Hemo..... its Terrible and If I have to have Kidney failure (like I have a choice  :o ) I would want to be on PD vs Hemo!! 


Oh yea, get on over to the "home Dialysis" thread and read over there..... It's my Favorite thread here :)
« Last Edit: August 05, 2011, 08:36:43 AM by tbarrett2533 » Logged
CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
Bajanne
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« Reply #14 on: August 05, 2011, 10:03:07 AM »
Welcome to our community, Sonarman2!  So glad you found us and decided to join this wonderful group of sharing and caring people.  You have found a new family  :grouphug; - people who understand exactly what you are going through.  So keep reading and keep posting.

Quote from: tbarrett2533 on August 05, 2011, 08:34:41 AM
you don't wanna be on Hemo..... its Terrible and If I have to have Kidney failure (like I have a choice  :o ) I would want to be on PD vs Hemo!! 

I have not found it that terrible.  I lose about 5 hours three days and week and I don't have to worry about supplies or doing the correct thing.  The centre takes care of that.  Anyway, it is the only modality available in the territory in which I live.




Bajanne, Moderator
« Last Edit: August 05, 2011, 10:05:26 AM by Bajanne » Logged
"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Sonarman2
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« Reply #15 on: August 05, 2011, 12:03:01 PM »
Thanks much to all. You're warm welcome is greatly appreciated. I'm learning a lot and know I have a whole lot more to learn about dialysis. S2
Quote from: Bajanne on August 05, 2011, 10:03:07 AM
Welcome to our community, Sonarman2!  So glad you found us and decided to join this wonderful group of sharing and caring people.  You have found a new family  :grouphug; - people who understand exactly what you are going through.  So keep reading and keep posting.

Quote from: tbarrett2533 on August 05, 2011, 08:34:41 AM
you don't wanna be on Hemo..... its Terrible and If I have to have Kidney failure (like I have a choice  :o ) I would want to be on PD vs Hemo!! 

I have not found it that terrible.  I lose about 5 hours three days and week and I don't have to worry about supplies or doing the correct thing.  The centre takes care of that.  Anyway, it is the only modality available in the territory in which I live.




Bajanne, Moderator
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tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #16 on: August 05, 2011, 03:43:22 PM »
Quote from: Bajanne on August 05, 2011, 10:03:07 AM
Welcome to our community, Sonarman2!  So glad you found us and decided to join this wonderful group of sharing and caring people.  You have found a new family  :grouphug; - people who understand exactly what you are going through.  So keep reading and keep posting.


I have not found it that terrible.  I lose about 5 hours three days and week and I don't have to worry about supplies or doing the correct thing.  The centre takes care of that.  Anyway, it is the only modality available in the territory in which I live.



Bajanne, Moderator
Hemo is just right for some people and you may be just that person  :2thumbsup; but it was def not for me.... There was only one thing that I liked about it and that was that it kept me alive other than that..... I dreaded it, the long recovery time, the smell, the legit bad taste I would get, infiltrations, the headaches, BP drops, cramping, tiredness/weakness I could'nt go any trips b/c I always had to be back for treatment (PD I take my supplies with me) Hemo took 15 hours a week while PD takes 12 (for me) and I am the boss....... I am in control of kidney faiure, Kidney failure is not in charge of me like it felt like on Hemo  :bow;

however some people LOVE HEMO, its def not for me!!!!


« Last Edit: August 05, 2011, 03:45:32 PM by tbarrett2533 » Logged
CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
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