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Author Topic: Hello from Florida, USA  (Read 1976 times)
unlucky
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« on: July 23, 2011, 01:15:03 AM »
I have been on HD for about 3 years now.  I started in Massachusetts and have moved to Florida.  At first I got listed in Mass. at Mass. General, then was taken off the list because of a disagreemet with a doctor.  I moved to FDla.  I went through all the hoops to get lsited here and was rejected again because one doctor, not a specialist, said I could possibly develop an infection and that medications curently on for back pain would interfere with post transplant medications. They would not discuss changing some of those medications, so it's time for rejection again.  This is only part of the story about how esrd has ruined my life.  I do hate dialysis and ..well..you all know the rest.
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Ang
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« Reply #1 on: July 23, 2011, 03:05:20 AM »
 :welcomesign;


look forward to the rest of the story.

Amazing how 1 doctor can say no transplant because i don't agree with you :urcrazy;
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live  life  to  the  full  and you won't  die  wondering
Rerun
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Going through life tied to a chair!
« Reply #2 on: July 23, 2011, 03:21:34 AM »
Hi Unlucky, and welcome to IHD.  I'm so glad you were lucky enough to find us.  You will like it here.  Go to Transplant Stories and tell us the rest of the story of you "trying" to become listed.  I bet some folks on here could give you some ideas to fire back at that doctor.

Hope you are doing well otherwise.

Rerun, Moderator      :welcomesign;
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monrein
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« Reply #3 on: July 23, 2011, 03:27:46 AM »
 :welcomesign; to IHD.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #4 on: July 23, 2011, 05:13:28 AM »
 :welcomesign;

Hi, Unlucky. I am hoping that you WILL get lucky again.  :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Marsh
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« Reply #5 on: July 23, 2011, 05:43:13 AM »
Welcome to IHD from Clearwater, FL!!! :cheer:
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looneytunes
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Wishin' I was Fishin'
« Reply #6 on: July 23, 2011, 07:52:04 AM »
Hi Unlucky and welcome to our group!   :welcomesign;

I hope you find enough info and ammunition here to fire back at that doctor and get listed! 
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"The key to being patient is having something to do in the meantime" AU
MooseMom
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« Reply #7 on: July 23, 2011, 12:56:23 PM »
I think you should change your screen name to "ThisMakesNoSense".  I am really curious to learn more about EXACTLY why your docs are objecting to you being listed.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
lmunchkin
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"There Is No Place Like Home!"
« Reply #8 on: July 25, 2011, 04:29:57 PM »
Welcome, Unlucky!  What a quandry you are in!  Well when you learn from others on how to fire back at doc, why not look into doing D. at home? It is so much better than In-Center.  Seriously, could you not do PD or Nxstage while waiting for transplant acceptance?
That way, when you find out Yea or Na to transplant, well you can continue to Dialysize at home!  Sounds like a plan to me!

Sorry you are going through all this nonsense with doc's. They really havent a clue as to what you go through!

God Bless you and please continue to keep us posted!

lmunchkin     :flower;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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