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mcclane
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« on: July 21, 2011, 02:25:48 PM »
not sure where to begin, i started off on PD over 7 years ago.  I was on that for little over 3 years when I received that special call from the hospital that a transplant was available.

that was the most exciting time of my life.  After transplantation, I had so much time I literally didn't know what to do with myself.  Wind the clock 3 years later, and the hospital has informed me that the transplanted kidney is on its last legs (bk virus).  Back to PD i go (that was last year june).  I was on PD until apr of this year, due to the fact that the peritoneal membrane has lost all of its effectiveness.  So now, it is home hemo.

there are advantages of home hemo over pd, such as a more liberal diet (ahhhhh diet pepsi !  :beer1;) but one huge downside is travelling.  I really enjoyed PD's flexibility when it came to traveling.  I know that you can go to dialysis centres for treatment, but you must pay up front first, and I honestly don't have that kind of cash; our province does reimburse (I believe it is around $500/treatment), but it takes at least 3 months before they send you a cheque, so in the meantime I could be out $1 - 2000 in the meantime.  So traveling is on hold.

Hopefully the hospital will call soon informing me that another kidney is available (been on the wait list for 3 years).

 :2thumbsup;
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jbeany
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Cattitude
« Reply #1 on: July 21, 2011, 02:32:22 PM »
 :welcomesign;

I hope your wait is short from here, mcclane!

jbeany, Moderator
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
peleroja
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« Reply #2 on: July 21, 2011, 04:17:57 PM »
Welcome to the group, mcclane.  My story is similar to yours, but without the transplant.  I'm now on hemo and getting worked up for the transplant list.  Glad you found us and told us your story!
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The Noob
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« Reply #3 on: July 21, 2011, 04:34:25 PM »
 :grouphug; welcome to the family! :grouphug;
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Rerun
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Going through life tied to a chair!
« Reply #4 on: July 22, 2011, 04:58:46 PM »
Welome to IHD.  I hope you find freedom again soon!! 

Rerun, Moderator      :welcomesign;
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Ang
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« Reply #5 on: July 22, 2011, 07:01:49 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
kellyt
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« Reply #6 on: July 22, 2011, 09:33:33 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Poppylicious
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« Reply #7 on: July 23, 2011, 02:04:03 AM »
 :welcomesign;

Hope you get The Call again soon!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
looneytunes
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Wishin' I was Fishin'
« Reply #8 on: July 23, 2011, 08:00:59 AM »
Hello McClane and welcome!   :welcomesign;

If NxStage is available to you, it is portable hemo and while air travel is not easy, traveling by car is not too bad. 
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"The key to being patient is having something to do in the meantime" AU
lmunchkin
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"There Is No Place Like Home!"
« Reply #9 on: July 25, 2011, 07:06:12 PM »
Welcome McClane.  Like Looneytune, We do NxStage at home and is portable for travel.  We are planning a trip in fall for about 10 days and totally taking this machine with us.  It would be hard to fly with the supplies and all, but I don't like to fly, so it really works for us!

I really hope a transplant comes soon for you, but while you are waiting for it, give this NxStage a try.  If you learned PD, you can learn Home hemo too. I think you will like this Modality!  We certainly do!

Take care and keep posting,

lmunchkin      :flower;

I
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
kellyt
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« Reply #10 on: July 25, 2011, 07:16:22 PM »
 :waving;  I hope you're able to get a new kidney again soon!   :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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