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Author Topic: Hello ...may i introduce myself  (Read 3880 times)
Knucklehead
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« on: January 14, 2007, 08:05:17 PM »
Hi..My name is Anthony, I am 44 years old, and was born with Spina Bifida, although i got off with it pretty lightly and i am fully mobile, apart from a slight limp, i suffered from some damage to my uriinary tract also, which, by the time i was 16 years old, was significantly damaging my kidneys due to reflux.

I then had to have a urostomy to prevent further damage, and that served me well until 1999, when i was diagnosed with chronic renal failure, since then my kidneys have slowly declined, and i am less than 10 per cent function now, and i had a fistula formed 4 months ago, so i don'tthink it will be long before i start hemo dialylsis.

i cannot have any other from of dialysis do to the proximty of the urostomy, e.g not enogh room in my abdomen and the risk of infection is also higher.

I have been lurking on this message board for i while now, and only plucked up courage to join today, i have allready learned alot from the members of this board, who i have nothing but respect for, i find you all inspiring, brave, sometimes frightening, but always informative and sometimes very funny.

I also hope i can contribute something that may be of use, and i thank you for reading my first post
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Zach
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"Still crazy after all these years."
« Reply #1 on: January 14, 2007, 08:09:09 PM »
Welcome Anthony!  I hope I'm not one of those "frightening" members you mentioned.  At least not all the time.    ;)
Anyway, it's good to have you join the community.  Looking forward to your posts!
Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Rerun
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Going through life tied to a chair!
« Reply #2 on: January 14, 2007, 08:11:55 PM »
Knucklehead I love your name and avatar.  Thank you for your introduction.  Are you a candidate for a transplant?

I'm so glad you finally joined.              :welcomesign;
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Knucklehead
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« Reply #3 on: January 14, 2007, 08:19:03 PM »
Rerun, actually i am, my sister is a good match, but i have to have my one remaining kidney removed first, because it is causing repeated infections, so i will have no function for about three months, then if i am stong enough, they will proceed with a transplant, assuming everything else goes to plan.

and hello Zach
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #4 on: January 14, 2007, 08:22:20 PM »
Hey Knucklehead, Welcome good to have you around, :welcomesign; :2thumbsup; every group needs a knucklehead! LOL
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #5 on: January 14, 2007, 10:43:54 PM »
 Welcome to our community!  I was thinking that you can't really be a knucklehead if you had the good sense to come to IHD!  Sorry to hear about your challenges, but I can sense that you are a survivor, like me. I am looking forward to hearing how everything goes.  Keep us posted.  You clearly understand this group already, and will be an excellent addition.
Blessings!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
okarol
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« Reply #6 on: January 14, 2007, 11:42:41 PM »
 :waving; Hi Knucklehead!
Welcome! Nice to read a little of your history!
Take care,
Karol
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Joe Paul
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« Reply #7 on: January 15, 2007, 12:29:11 AM »
Welcome Knucklehead, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Knucklehead
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« Reply #8 on: January 15, 2007, 01:28:47 AM »
Thanks for all the kind comments, made me feel better already ;D
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Sluff
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« Reply #9 on: January 15, 2007, 10:45:30 AM »
Hey Knucklehead,

Thanks for becoming a member of IHD.

I'm looking forward to your posts.
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nextnoel
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« Reply #10 on: January 16, 2007, 10:11:38 AM »
Welcome, Knucklehead! :welcomesign;  I'm glad you decided to come on out and play! :2thumbsup;
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I can't reach the hill like I used to, but I'm not at a standstill yet!
mallory
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« Reply #11 on: January 16, 2007, 11:47:21 AM »
Welcome, Knucklehead, glad you're here!  I hope I'm not one of the frightening members, but I probably can be.  Don't ever be intimidated, you have a lot to add and we're glad you joined!   :welcomesign;
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
jbeany
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Cattitude
« Reply #12 on: January 17, 2007, 05:32:50 PM »
Welcome to IHD!

 :welcomesign;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
shay_pcb
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« Reply #13 on: January 17, 2007, 06:59:33 PM »
 :welcomesign; I know I'm prolly one of the scary ones!! lol Welcome to IHD. Don't forget to post a pic in our "family photo album" here: http://ihatedialysis.com/forum/index.php?topic=1227.340 if you want to...
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goofynina
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He is the love of my life......
« Reply #14 on: January 18, 2007, 01:38:37 PM »
Sorry i am a little late welcoming you to our website Knucklehead (Anthony) but you know the saying, better late than never right? right! :) :)  I hope they are able to remove that kidney so you can get your sisters and get on with your life.  We are here for you and we look forward to hearing more from you...

Goofynina/Admin
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
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