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survivor
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Hi
« on: June 29, 2011, 05:25:34 PM »
Hi,
  This is survivor. I had a transplant in June '98. Celebrated the 13 years anniv few days back. Donor-Mom. A question? Is there anyone out there, who got cancer after the transplant. I got transitional cell carcinoma in my ureter, in 2004. Was told it was because of the immunosuppressants. Just wondering, if anyone has knowledge about this?

Ciao,Survivor.
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Ang
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« Reply #1 on: June 29, 2011, 05:36:16 PM »
 :welcomesign; survivor

sorry can't help,but sure to be some around who can help :thumbup;
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live  life  to  the  full  and you won't  die  wondering
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #2 on: June 29, 2011, 05:37:12 PM »
 :welcomesign;

Welcome to the group, Survivor!

My husband was recently transplanted and cancer is an on-going concern.  :embarassed:

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
natnnnat
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« Reply #3 on: June 29, 2011, 06:02:12 PM »
Hi Survivor and a big  :welcomesign;
Congratulations on your long lasting good health.
My husband who had a tranplant in 91 had a chunk of skin cancer taken off the side of his head a few years ago, and there's another patch of flaky skin which we are keeping a very close eye on.  In a separate example, my friend who had a transplant got skin cancer on his eyelid which they just couldn't contain, he lost his eye, and it still wasn't contained, he died of the complications of that cancer. It was bad.
Not sure what to say beyond what Aleta said:  yes, its a concern.  Responding to the idea that it is "because of the immunosuppressants", so far as I have ever heard, the immunosuppressants don't give you cancer as such, but they allow the cancer more leeway.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
lmunchkin
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"There Is No Place Like Home!"
« Reply #4 on: June 29, 2011, 07:02:23 PM »
Natnat, that is my understanding of it also!

lmunchkin      :cheer:
« Last Edit: June 29, 2011, 07:03:25 PM by lmunchkin » Logged
11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Jie
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« Reply #5 on: June 29, 2011, 08:42:02 PM »
 :welcomesign;

Not just cancer, after transplant, many health risks increase. Hopefully, some days, there are ways to replace these immu. drugs.
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peleroja
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« Reply #6 on: June 30, 2011, 03:03:00 PM »
Welcome to the group, survivor.  Can't help with your question, but I'm glad you found your way to us.
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survivor
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« Reply #7 on: July 06, 2011, 11:55:20 AM »
Thanks for welcoming me.  :waving; I have to say, cancer is always an ongoing concern. Having been through one, it scares the hell out of me. That said, I am in full remission for the past 6 years and so, not bad.  :2thumbsup;
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Rerun
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Going through life tied to a chair!
« Reply #8 on: July 07, 2011, 02:21:13 AM »
The anti-rejection drugs lower your immune system so that your body doesn't fight off this foreign kidney.  Therefore, you get things like cancer and other t-cell abnormalities.  I'd rather have a transplant and take my chances.  Best of luck and welcome to IHD.

Rerun, Moderator      :welcomesign;
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jeannea
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« Reply #9 on: July 07, 2011, 06:43:02 AM »
I had a transplant in 98 also from my mom. But I had CMV not cancer. I'm sorry that happened to you. They had warned me about the possibility. Are you doing ok now? Or are things still difficult? Does your transplant still work or did you have to back off on the drugs?
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peleroja
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I have 16 hats, all the same style!
« Reply #10 on: July 07, 2011, 06:33:03 PM »
Welcome to the group, survivor.  Can't help you with your question, but I'm glad you found us.  Someone is bound to know the answer.
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survivor
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« Reply #11 on: July 11, 2011, 12:32:08 PM »
Hi Jeanne,
   Yes, I am fine now. Thirteen years of transplant , out of which 6 years of cancer survivorship and I am still doing fine.   When I started taking immunosuppressants for anti-rejection, I knew cancer was a possiblity, just didn't expect it to attack so soon. Sigh! Anway, take life one day at a time and face it.  In fact, people think I am a normal 37 year old female and are astonished when I tell them about myself. Touch Wood. But, the hardships has made me a better person.
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