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Author Topic: It's been a month now!!  (Read 3562 times)
carla13
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« on: July 03, 2010, 10:01:57 AM »
I've had my new kidney 'Britney' for just over a month now!

So much to get used to! Peeing! firstly and foremostly, wow, sometimes I have to get up in the night, and it's not because my machine's alarming!
Food! So much lovely food to eat! Chips and tomatoes and bananas on toast, orange juice and hummus and cos I'm on pred I feel like eating all the time! I'm going to be ENORMOUS!!!
Fluid: I'm drinking 3 litres a day (no restrictions!) and really enjoying the different tastes of all the yummy juices I'm drinking!
Feeling better every day: instead of the grind of feeling constantly below par and exhausted on D I now feel more optimistic and want to get up in morning to see what the day will bring!
Not setting up my machine every night! I love this! I can go straight to bed when I'm tired and not have to worry about 4 handwashes, setting up the PD then 10 hours when I can't leave my bedroom!!

I know that the road is ro cky and by no means has this tx been a picnic, it could fail any time and I have to be very careful about my health (when is that never an issue for us?!) but even if I just get a short time free of dialysis, I will be forever grateful. It's been lovely to spend the last 2 weeks with my husband, we went out for a meal for our anniversary (2 years!) and I could eat whatever I wanted and drink as much as I wanted to (NO! not like that!  ::) we're planning a honeymoon, because we missed our original one as I had peritonitis.
I wish this process could happen for everyone who wants it, and that it would be trouble free, I would love everyone on IHD to share in how I feel at the moment. Just hope it lasts for me and everyone else who has this incredible gift.
carla
xx
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: July 03, 2010, 10:03:56 AM »
 :2thumbsup; Good news! I hope it lasts a long, long time!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
bette1
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My dear daughter
« Reply #2 on: July 03, 2010, 11:38:24 AM »
I love that you named your kidney!  I've had my kidney for about 5 weeks,  Maybe I'll name him Carlos...  Hope things continue to go well for you. :flower;
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
Dianejt
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« Reply #3 on: July 03, 2010, 11:59:58 AM »
 :cheer: I'm so happy to hear how wonderful you are feeling. I  wish you many many years of good health. :flower;
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
RichardMEL
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« Reply #4 on: July 03, 2010, 08:22:26 PM »
Carla!! I love this post!! This is exactly the sort of thing those of us waiting for the miracle need to hear. I'm not jealous, I'm not envious(well OK, maybe a little!) but so overjoyed for you that so far it is all going so well. When people say to me why would I want to take the risk of a transplant - this is the sort of reason why. Your comment about waking up in the morning to see what the day brings sums it up - so full of energy and spirit and optimism for what this renewed stage of life means and offers you! I'm so excited - not just for you, but that hopefully someday that will be my reality, and that of every other person on IHD(and off it, even) waiting for a transplant. I know it won't work out for everyone - maybe not even me - but this is the kind of goal I dream about.

Hoping it continues for years and years!!!

 :bow; :bow; :bow; :bow; :yahoo; :yahoo; :2thumbsup; :clap;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Jean
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« Reply #5 on: July 04, 2010, 12:17:02 AM »
That is such great news. So glad everything is working out for you now. Hope your new kidney works perfect forever. And, a belated Happy Anniversary too.
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One day at a time, thats all I can do.
galvo
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« Reply #6 on: July 04, 2010, 06:04:41 AM »
Good on you, Carla. Enjoy!
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Galvo
renalpenguin
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« Reply #7 on: July 05, 2010, 06:35:44 PM »
Great news! My transplanted kidney Ned says hi.  :)
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August 2007- Diagnosed with nephrotic syndrome
September 2007- Kidney Biopsy found FSGS
December 15, 2009- Transplant Evaluation
January 7, 2010- I'm on the list!
February 4, 2010- Fistula and PD Catheter Surgery
March 8, 2010- Begin CCPD; My cousin will be my donor in June!
June 22, 2010- I got a kidney from my awesome cousin!
"Trust in the Lord with all your heart. Lean not on your own understanding. In all your ways acknowledge Him and He will make your paths straight." Proverbs 3:5-6
staceyand joe92
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« Reply #8 on: July 05, 2010, 06:46:59 PM »
So glad you are doing well. I am 7 months out and enjoying my new freedom tto!I think it is cute how we all seem to name our new kidney. Mine is Nicholas. I found out later that my donor was a girl so I guess I should actually change that to Nicole. LOL!
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PKD
in center dialysis 3/week 3 hours for 16 months
11/2008 transplant list (active)
6 living donors denied
12/2009 Kidney Transplant
natnnnat
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« Reply #9 on: July 05, 2010, 08:30:29 PM »
Yay!  Hi Ned!!!   :beer1;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Sunny
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Sunny
« Reply #10 on: July 06, 2010, 03:47:55 PM »
I am happy you are feeling well and starting a new part of your life. It must be so nice to be able to drink and eat whatever you want now. Enjoy.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #11 on: July 07, 2010, 02:16:24 AM »
So glad for you !  :cuddle;  You just keep on keeping on!!!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
chook
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Born to be a Granma!
« Reply #12 on: July 07, 2010, 06:39:10 PM »
Carla. so great to read positive news like that! All the best for the months ahead!
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
carla13
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« Reply #13 on: July 11, 2010, 07:14:30 AM »
Thanks all! The reason I named my second kidney Britney was not in honour of crazy popster, Ms Spears.but because kidney TX number 1 was called Sidney, so my friend Sacha suggested that the second be called Britney.

Just thought I'd clear that up!!

xx
carla
xx
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kidneystudy
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« Reply #14 on: July 07, 2011, 01:42:43 AM »
.
« Last Edit: April 29, 2013, 09:09:43 AM by kidneystudy » Logged
Marina
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God Bless my donor family!! :)
« Reply #15 on: July 07, 2011, 10:19:41 AM »
 :grouphug;
« Last Edit: July 07, 2011, 10:26:49 AM by Marina » Logged
"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

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 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
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