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Author Topic: Hello from Hamilton, Ontario, Canada  (Read 2336 times)
EndPKD
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« on: July 02, 2011, 04:20:15 PM »
Hi! I was diagnosed with polycystic kidney disease in late 2004, when I was living alone overseas. It also affects my liver.  :o  Since my follow-up kidney tests at the time came back showing normal function, I didn't give the diagnosis much more thought...

In 2007, I returned to Canada and by 2009 was in a serious relationship. The possibility of having children who would have a 50% chance of inheriting PKD made me think about it again. Then, I came across a PKD Walk hosted by the PKD Foundation of Canada (based in Toronto) and immediately joined in, with my fiance.

Now, happily married, and with enlarged, but, fortunately, still functioning kidneys, I volunteer in my community to raise awareness of PKD and funding for PKD research. I wish everyone in the IHD forum well!  :cheer:
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lmunchkin
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« Reply #1 on: July 02, 2011, 06:57:44 PM »
That is awesome, EndPKD! Welcome to IHD.  So glad you found us and hope to learn alot from your posts! What an advocate you will be for PKD! On behalf of this family, we Thank you for your time and service to this cause!

lmunchkin        :flower;      :bandance; :bandance; :bandance;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Ang
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« Reply #2 on: July 02, 2011, 07:29:44 PM »
 :welcomesign; end pkd

well done on your volunteering work








EDITED - Icon Error corrected - Bajanne, Moderator
« Last Edit: July 04, 2011, 07:53:43 AM by Bajanne » Logged
live  life  to  the  full  and you won't  die  wondering
MooseMom
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« Reply #3 on: July 02, 2011, 10:22:41 PM »
Thank you to both you and your fiancee for putting in time and effort to support this very worthy cause.  Welcome to IHD!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Razman
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« Reply #4 on: July 04, 2011, 05:29:28 AM »
   Welcome aboard from another Canadian.  (Mississauga) .   Please visit often.  You will find a great area to talk to others and get information.    :welcomesign;
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Cordelia
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« Reply #5 on: July 04, 2011, 05:57:27 AM »
Hi! Welcome to you from another fellow Canadian from the K-W area of Ontario! Enjoy the site!    :welcomesign;  I have PKD too!
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #6 on: July 04, 2011, 07:58:35 AM »
Welcome to our community!   We are happy to have you join us.  I think what you are doing is great.  We are looking forward to you adding your voice to our forum.  In fact I have to let you know that this is not just a forum - it is a genuine family  :grouphug;  a wonderful group of caring and sharing people.  So you keep on keeping on.   Let us know how you are doing.






Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
willowtreewren
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My two beautifull granddaughters

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« Reply #7 on: July 04, 2011, 08:02:21 AM »
Welcome to IHD!

 :welcomesign;

My daughter has PKD that affects her liver, too. She has two daughters, and I dread the day we find out whether they have PKD, too. She discovered that she had it when she went to get tested to see if she could be a donor to her dad. PKD runs rampant in my husband's family!  :thumbdown;

Thanks for your activism!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
looneytunes
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Wishin' I was Fishin'
« Reply #8 on: July 04, 2011, 07:42:12 PM »
Welcome to our community.   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
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