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Author Topic: Greetings from Fayetteville, NC!  (Read 2537 times)
drgirlfriend
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« on: July 07, 2011, 07:41:25 AM »
Hello!

My boyfriend was diagnosed with ESRD in February after a bad bout of flu. He is 26 and this was really a bad surprise for both of us. His kidneys are small and scarred, so no biopsy was done to determine exactly why they crapped out, but my guess is long term, undetected high blood pressure. He was able to limp along on what little kidney function he had until last month when the bottom fell out. He just got his PD catheter put in last week and we're hoping to do the nighttime cycler and start looking for a donor.

Needless to say this has all sucked mightily. The doctor appointments, the dietary restrictions, the meds, the anger, the expenses, the depression and the exhaustion have weighed on us quite a bit. We were saving to move away from here, but that's on hold for now. Neither of us has family here or really close friends (we've lived here for 3 years), so the caretaking is pretty much on me. I'm looking forward to reading and asking and learning!
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Boyfriend diagnosed with renal failure Feb. 2011. Cause unknown.
PD Catheter "installed" June 30, 2011.
Began CAPD August 11, 2011.
On transplant list 11/23/11.
Started Liberty Cycler 12/1/11.
YLGuy
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« Reply #1 on: July 07, 2011, 08:22:19 AM »
 :welcomesign; Welcome drgirlfriend! There is a lot of good information here at IHD for patients as well as caregivers.  Glad you found us.
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willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: July 07, 2011, 09:04:55 AM »
Hey, Girl!  :welcomesign;

I understand the emotions and challenges that you are facing right now!  :cuddle;

I'm glad you found us!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #3 on: July 07, 2011, 09:29:25 AM »
 :welcomesign;  This is a great place to learn and ask questions. Great people who are happy to help with support and answers.
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
Chris
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« Reply #4 on: July 07, 2011, 06:33:41 PM »
Hi Drgirlfriend, Venture Brothers name I take?  :rofl;
Sorry to hear about your situation. Is there an insurance issue regarding dialysis We can suggest areas to look at for assistance.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Ang
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« Reply #5 on: July 07, 2011, 10:13:53 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
looneytunes
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« Reply #6 on: July 08, 2011, 05:37:40 AM »
Hello and welcome to our group!   :welcomesign; 
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"The key to being patient is having something to do in the meantime" AU
Brightsky69
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« Reply #7 on: July 08, 2011, 07:03:01 AM »
 :welcomesign;
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
drgirlfriend
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« Reply #8 on: July 08, 2011, 07:51:31 AM »
Thanks to everyone for the warm welcome! Yes, the name is a Venture Brothers reference. It was going to be either Dr. Girlfriend or Mrs Peel from The Avengers. I'm fond of strong female action and comic characters.

The financial issues aren't too terrible. My boyfriend has insurance, so that certainly helps a lot, but I'm not working right now. Also, we don't know what our cost will be for dialysis yet.
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Boyfriend diagnosed with renal failure Feb. 2011. Cause unknown.
PD Catheter "installed" June 30, 2011.
Began CAPD August 11, 2011.
On transplant list 11/23/11.
Started Liberty Cycler 12/1/11.
Bajanne
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« Reply #9 on: July 08, 2011, 08:10:37 AM »
Welcome to our community, drgirlfriend!  It is always great when someone joins us because of concern for a loved one.   I had no clue what Chris was talking about, so I was glad you replied!  You have come to just the right place for information, support, encouragement, and even fun.  You must check out the caregivers' section - there you will meet many who are looking after a loved one.  You are now part of the wonderful IHD family  :grouphug;  Just keep reading and keep posting.




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
jbeany
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Cattitude
« Reply #10 on: July 08, 2011, 10:22:42 AM »
 :welcomesign;
Thanks for joining us - we all try our best to help each other here by sharing our experiences.  Jump right in and start asking questions and sharing your own thoughts!  IHD is a great place to help and be helped at the same time.

jbeany, Moderator
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Poppylicious
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« Reply #11 on: July 08, 2011, 01:49:04 PM »
 :welcomesign; drgirlfriend!

*huggles*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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