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Author Topic: A summer of sadness...  (Read 43484 times)
pelagia
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« Reply #50 on: August 20, 2009, 12:44:22 PM »
MM- If you are asking about the clinical trials, you can read about them at this link http://www.pkdcure.org/ResearchMedicine/PKDClinicalTrials/tabid/142/Default.aspx.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
pelagia
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« Reply #51 on: August 24, 2009, 11:56:05 AM »
The doc called this morning about Will's 24 hour urine collection test.  He said the protein levels are within normal range now and the bp is under control.   :)
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
willowtreewren
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My two beautifull granddaughters

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« Reply #52 on: August 24, 2009, 12:05:23 PM »
Oh, Linda,

That is wonderful news!  :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile
« Reply #53 on: August 24, 2009, 12:15:16 PM »
Great news to precede the return to school.    :flower;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
twirl
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« Reply #54 on: August 24, 2009, 01:08:36 PM »
 :cheer: :cheer: :cheer:
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willieandwinnie
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« Reply #55 on: August 24, 2009, 03:03:09 PM »
 :waving; Oh Linda, that is some good news. You can breathe now.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
lola
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I can fly!!!
« Reply #56 on: August 24, 2009, 03:06:31 PM »
 :bandance; :bandance; :grouphug; :grouphug;
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www.caringbridge.org/visit/ottomachado
kimcanada
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« Reply #57 on: August 24, 2009, 04:23:57 PM »
SOOOOO Happy for you and your son!!!!   :grouphug;
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Mizar
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« Reply #58 on: August 24, 2009, 04:54:57 PM »
33 Years, is a Long, Long Time. This is Sad, My Prayer, will be that God, gives You, Comfort, and Hope, during this Stressful time, with Your Husband and Son.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #59 on: August 24, 2009, 04:56:58 PM »
Quote from: pelagia on August 24, 2009, 11:56:05 AM
The doc called this morning about Will's 24 hour urine collection test.  He said the protein levels are within normal range now and the bp is under control.   :)

 :2thumbsup; Oh I am so happy - that's what we wanted to hear.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!
« Reply #60 on: August 24, 2009, 08:24:45 PM »
With all you have been through you are not going to miss a note when it comes to Will's kidneys.

Good to hear that things are normal for now.
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rose1999
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« Reply #61 on: August 24, 2009, 11:23:19 PM »
Linda I am so pleased to read that Will's results are normal.  I hope they stay like that for a very long time, preferably for ever.  Bless you both, I wish you good health and happiness.
Rose xx
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breezysummerday
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« Reply #62 on: October 10, 2011, 11:01:19 PM »


miss you pelagia...we have sooo much in common now...how are you doing?
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
iketchum
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« Reply #63 on: October 11, 2011, 02:41:08 AM »
You may miss your husband, but you must have less stress now that he is no longer in the picture. I was wondering if Will has joined our community yet. He may enjoy and benefit from our combined experience with kidney problems. You know his friends may have a hard time understanding what he is going through, but we all know. You are a great Mom, sorry you have to go through this.
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