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Author Topic: Okay, So I am an ASS! / One Year Transplant Anniversary  (Read 3884 times)
BASSMAN
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« on: July 22, 2011, 10:43:58 AM »
One year ago today I recieved the most precious gift.  The gift of life!  Given to me by my wife Colleen.  I am happy to say that recent labs for both of us were excellent.  Colleen's creatinine .9.  Mine is 1.2 and all other blood values of mine are in the normal range.  There have been some ups and downs along the way.  I may post another thread to share information about them. :2thumbsup;


Now for the ass part.  I swore I would not abandon the site after I recieved my transplant and yet I rarely post anymore.  I do read and lurk a bit.  I do appreciate all of you and the support and information that I received from so many members of the sit.  A special thank you to Karol Franks.  I will make it a point to become more active and stick aroud!!!

My appoligies :waiting;

 :guitar:
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
MooseMom
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« Reply #1 on: July 22, 2011, 10:55:55 AM »
You have a lot of offer all of the people here who are contemplating transplantation.  We value your experience and share in your wonderful luck.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #2 on: July 22, 2011, 11:37:09 AM »
congrats Bassman...so happy for you and your wife!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Poppylicious
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« Reply #3 on: July 22, 2011, 01:25:10 PM »
Happy kidneyversary!

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Deanne
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« Reply #4 on: July 22, 2011, 01:25:37 PM »
Happy anniversary and thank you for checking in. I saw your name just this morning on an old post and was wondering where you've been. I'm glad you've been out living your life and I hope your "ups" have been greater than your "downs."
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
lou
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« Reply #5 on: July 22, 2011, 01:47:34 PM »
 :2thumbsup;
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willowtreewren
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My two beautifull granddaughters

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« Reply #6 on: July 22, 2011, 07:02:21 PM »
Good to hear of your kidneyversary!

 :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Chris
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« Reply #7 on: July 22, 2011, 07:43:15 PM »
1. Congrats
2. Don't worry about it. Some people take breaks away from the site, some can't come due to medical, loss of internet or computer, and s on.
So a quote from Die Hard "Don't get your panties in a bunch....." :rofl; :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
boswife
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us and fam easter 2013
« Reply #8 on: July 22, 2011, 09:06:22 PM »
you make me laugh  :clap;   It's great to see ya here and WONDERFUL to hear your doing good.  Love to hear it all if ya get the notion  ;D    :waving;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
kellyt
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« Reply #9 on: July 22, 2011, 09:31:18 PM »
Happy 1 Year Kidneyversarry!!!  Sooo glad you're doing well!  :)   :bandance;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #10 on: July 22, 2011, 10:12:19 PM »
 :waving; It's always good to hear from you Bassman. I am happy you're healthy and busy living your life! Come back anytime - and tell us what you're doing for fun!
That sweet wife of your is a SAINT! Living donors ROCK!!   :bow;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
BASSMAN
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« Reply #11 on: July 22, 2011, 10:15:36 PM »
You are all so kind!  Thank you all very much!  Love to you all!
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
Sluff
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« Reply #12 on: July 23, 2011, 03:37:08 PM »
Like others have said, you have plenty of hope to share to those who havent yet traveled where you have been. Good to see you.
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jbeany
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Cattitude
« Reply #13 on: July 28, 2011, 02:55:32 PM »
Bassman, I just figure any transplant recipient who doesn't drop in often is just too busy living life to visit as much.  This is a good thing!

 :bestwishes;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
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