renal30yrs
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« on: January 14, 2007, 06:31:24 AM » |
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I'm new to this site. Living with renal failure/dialysis/transplant/and back to dialysis for about 30 yaers. Wish you all best of luck to survive this trip.
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Zach
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« Reply #1 on: January 14, 2007, 06:33:52 AM » |
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Welcome to our community! I feel like a newbie compared to you. Looking forward to your posts!
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment. I make films. Just the facts: 70.0 kgs. (about 154 lbs.) Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk Dialysate flow (Qd)=600; Blood pump speed(Qb)=315 Fresenius Optiflux-180 filter--without reuse Fresenius 2008T dialysis machine My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day. "Living a life, not an apology."
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Joe Paul
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« Reply #2 on: January 14, 2007, 07:03:55 AM » |
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Welcome renal30 years, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules" Angels are with us, but don't take GOD for granted Transplant Jan. 8, 2010
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boxman55
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« Reply #3 on: January 14, 2007, 08:22:26 AM » |
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Welcome, wow 30 years I am at for 5 months looking forward to hearing more of your experiences
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"Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008
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Sluff
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« Reply #4 on: January 14, 2007, 05:02:33 PM » |
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renal30yrs
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Laura
Newbie
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Posts: 19
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« Reply #5 on: January 14, 2007, 07:19:46 PM » |
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I definitely want to hear more about your experiences. You have lived with this a long time. Those of us who are just beginning dialysis need role models to look up to. Thanks for joining!
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Rerun
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« Reply #6 on: January 14, 2007, 07:57:16 PM » |
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Renal30 I'm so glad you found our site. I hope to hear more from you. For the introduction, please tell us a little more about yourself. Where are you from etc. I know you are over 30.
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tamara
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« Reply #7 on: January 14, 2007, 08:32:33 PM » |
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Gee 30 years, you must have seen some changes over the years. Come on bring it on we want details.......................................
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ABO Incompatible Transplant from my loving Partner 23/10/07 after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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angieskidney
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« Reply #8 on: January 14, 2007, 08:33:17 PM » |
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Hi and welcome! I would like to know more about you! Have you been back on dialysis this time around for 30 years or 30 years total you have been dealing with kidney disease?
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Bajanne
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« Reply #9 on: January 14, 2007, 10:24:27 PM » |
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Welcome to our community! Hearing that you have been dealing with this challenge for 30 years is very reassuring. Please tell us more about yourself. Welcome again!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family!
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nextnoel
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« Reply #10 on: January 16, 2007, 10:15:44 AM » |
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Welcome, renal30yrs! I'm looking forward to your posts!
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I can't reach the hill like I used to, but I'm not at a standstill yet!
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mallory
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« Reply #11 on: January 16, 2007, 11:53:30 AM » |
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Welcome, renal30years! If you've been dealing with this for 30 years, you'll be such a great addition to the site. Looking forward to hearing more form you!
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Sometimes the light’s all shinin’ on me; Other times I can barely see. Lately it occurs to me what a long, strange trip it’s been. - Jerry Garcia
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renal30yrs
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« Reply #12 on: January 17, 2007, 02:22:37 AM » |
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Thank you all. Appreciate all the kind words of encouragement. The first time I was ever dialyzed was 7/17/1976. Fortunately the renal function recovered to a point I didn't have to dialyze on a chronic basis for another 4 more years. Started n-center hemodialysis from May 80' through March 82'. Tried CAPD for about 6 months (miserable failure). Back to hemo from September 82' to June 83'. Lived with a real gift of a transplanted kidney for 23 years. Back to hemodialysis from last July. That's it folks.
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« Last Edit: January 17, 2007, 02:39:45 AM by renal30yrs »
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angieskidney
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« Reply #13 on: January 17, 2007, 07:39:26 AM » |
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Thank you all. Appreciate all the kind words of encouragement. The first time I was ever dialyzed was 7/17/1976. Fortunately the renal function recovered to a point I didn't have to dialyze on a chronic basis for another 4 more years. Started n-center hemodialysis from May 80' through March 82'. Tried CAPD for about 6 months (miserable failure). Back to hemo from September 82' to June 83'. Lived with a real gift of a transplanted kidney for 23 years. Back to hemodialysis from last July. That's it folks.
CAPD used to be so much different back then. Like you used to have to wrap the bag with the tubing around you instead of disconnecting it I was told when I started CAPD in 1990. I look forward to ALL your stories as you sure must have a lot of first hand experience! I am very interested in them all and hope you make a LOT of new posts on how dialysis used to be and how far it has come!
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shay_pcb
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« Reply #14 on: January 17, 2007, 12:58:01 PM » |
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