I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
October 12, 2024, 07:32:53 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  Here we go again		 0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Here we go again  (Read 5616 times)
billybags
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2190
« on: June 01, 2011, 11:21:42 AM »
4 months ago my husband had an heart attack, they sorted it and put in another stent.he has gone down hill ever since and they can not find out what is going on. He has had :
x-rays
CT scans
MRI scans
endoscopy
He is tired all the while, breathless and his legs do not hold him up, no feeling below his knees and he has to walk with sticks.His weight keeps going down because his appetite is not good. I can not fault the nephs they are doing every thing they can to sort him. His dialysis is OK and his bloods are OK. Yesterday he had pains in his chest again and it was a paramedic and ambulance to A&E He is now in a renal ward being checked over, they say his potassium is low and the pains could be angina so we are now waiting for a cardiologist to see what the matter is.All this waiting for appointments takes time and he is getting worse. Next week we have to see a vascular specialist, that's if he is well enough. The knife edge is getting sharper, our daughter gets married in 8 weeks time and how it is at the moment I will be giving her away. Life is shi* at the moment.
Logged
Poppylicious
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3023


WWW
« Reply #1 on: June 01, 2011, 11:28:06 AM »
Awww, billybags ... *huggles*

It must be so tough, on all of you.  At least he's being kept an eye on and maybe now he's under 24 hour supervision at the hospital, they'll be able to run oodles of tests and find out precisely what's wrong so it can be dealt with. 

I'll keep everything crossed (oh yes, EVERYTHING) that he'll be more than able to walk your daughter up the aisle and enjoy the celebrations!

 :grouphug;
Logged
- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
jbeany
Member for Life
******
Offline Offline

Gender: Female
Posts: 7536


Cattitude
« Reply #2 on: June 01, 2011, 11:56:15 AM »
 :grouphug;
Logged
"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #3 on: June 01, 2011, 12:36:18 PM »
That sucks. So sorry. :(
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kristina
Member for Life
******
Offline Offline

Posts: 5530
« Reply #4 on: June 01, 2011, 01:39:41 PM »

Hello, Billy, I am very sorry for you and your husband and I do hope
they diagnose what's wrong with him and treat him soon.
At least he is in the hospital and the chances are
that a diagnosis is found soon.

Best wishes from Kristina.  :grouphug;
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
boswife
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2644


us and fam easter 2013
« Reply #5 on: June 01, 2011, 01:45:37 PM »
terrible times... im so sorry and hope this is just another bump and all will be well for a long time to come..   :grouphug; :grouphug;
Logged
im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
willowtreewren
Member for Life
******
Offline Offline

Gender: Female
Posts: 6928


My two beautifull granddaughters

WWW
« Reply #6 on: June 01, 2011, 01:47:18 PM »
I hate that you are going through this!  :thumbdown;

I know that you need more than cyber hugs, but from across the pond, that is all I can give you.  :'(

 :grouphug; :grouphug; :grouphug;

Please know that I care and will be hoping for better times.

Aleta
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
galvo
Member for Life
******
Offline Offline

Gender: Male
Posts: 7252
« Reply #7 on: June 01, 2011, 07:42:03 PM »
Wishing you all the best, billybags.
Logged
Galvo
Jean
Member for Life
******
Offline Offline

Gender: Female
Posts: 6114
« Reply #8 on: June 02, 2011, 12:07:51 AM »
Hope that things get better for both of you soon, BillyBags. Poor guy, he really must be miserable.
Logged
One day at a time, thats all I can do.
billybags
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2190
« Reply #9 on: June 02, 2011, 11:00:22 AM »
Thanks every one for your posts, Hubby should be out of hospital to-morrow, nothing has changed but they said the pains could have been caused because he stopped taking his blood thinner for 3 days, he is on Efient Prugrusal a new super thinner. We were told by a "DOCTOR" to stop taking these for 3 days before a neurological test, where they put needles in your muscles to see if your brain is receiving them. Suffice to say we will not be going for this procedure if this is what happens. You would have thought the DOCTOR would have consulted the cardio before doing this. It could have been a full blown heart attack, we are at their mercy. So next week we have a vascular appointment . Since being in the renal ward he has come across 2 people with the same thing. Their legs are not getting any blood to them, but they are also diabetic and  my husband is not. Once again thanks.
Logged
willowtreewren
Member for Life
******
Offline Offline

Gender: Female
Posts: 6928


My two beautifull granddaughters

WWW
« Reply #10 on: June 02, 2011, 11:02:09 AM »
 :banghead; :banghead; :banghead;

Argh!

 :grouphug;

sending those hugs to you!

Aleta
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lmunchkin
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2471

"There Is No Place Like Home!"
« Reply #11 on: June 02, 2011, 07:53:56 PM »
So sorry you are going through this!  Jusy keep on keeping on.  Sending prayers your way!   :pray; :pray; :pray;

lmunchkin    :flower;
Logged
11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
AguynamedKim
Full Member
***
Offline Offline

Gender: Male
Posts: 274
« Reply #12 on: June 02, 2011, 08:19:09 PM »
I'm so sorry things have not been going well.  I really hope they are able to find something and treat it soon.  All the best, Billybags.
Logged
Pre-dialysis - Intro: http://ihatedialysis.com/forum/index.php?topic=20344.0
billybags
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2190
« Reply #13 on: June 07, 2011, 10:34:57 AM »
So here we go again, hubby came out of hospital Thursday evening and Monday he has got peritonitis. went to unit for antibiotics, that will be another week of visits to the unit. I don't  know how much more of this we can take, we are both exhausted.
Logged
billybags
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2190
« Reply #14 on: June 08, 2011, 11:27:13 AM »
Nurse phoned last night and his bloods from the sample are Ok and he has not got peritonitis, thank goodness.it must have been one of those things she said.
Logged
Poppylicious
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3023


WWW
« Reply #15 on: June 08, 2011, 01:41:10 PM »
Phew!  Perhaps now you can start to relax, billybags.

*huggles*
Logged
- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
aharris2
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1394


Volcan Pacaya, Guatemala
« Reply #16 on: June 08, 2011, 04:07:48 PM »
Quote from: billybags on June 08, 2011, 11:27:13 AM
Nurse phoned last night and his bloods from the sample are Ok and he has not got peritonitis, thank goodness.it must have been one of those things she said.

 :grouphug;

Good news billybags. I am happy for you both. I hope things get back on track for you quickly.
Logged
Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
lmunchkin
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2471

"There Is No Place Like Home!"
« Reply #17 on: June 08, 2011, 04:57:03 PM »
Good news, now maybe things can settle down for you both. You guys have really been through it!! Keep us posted B.B.

lmunchkin   :flower;
Logged
11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
billybags
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2190
« Reply #18 on: June 09, 2011, 05:31:05 AM »
More good news, he went for a vascular test yesterday because his legs do not feel like they belong to him, he is having to use sticks. The test came up that he has strong pulses in both legs  so now we are being thrown to the nuero testing, I have said all along  its his Brain not working, not sending signals. LOL
Logged
rsudock
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1351


will of the healthy makes up the fate of the sick.
« Reply #19 on: June 09, 2011, 06:33:23 AM »
wow you two are going through the ringer...what a roller coaster ride.  Hang on! I am thinking about you. I assume your hubby does PD?

xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
billybags
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2190
« Reply #20 on: June 09, 2011, 11:08:11 AM »
rsudock, thanks for that and yes he has been on APD for the last 2 years and seems to be doing OK. Its just all this sh*t since he had his heart attack 4 months ago.Our daughter gets married in 6 weeks time so fingers crossed he will be able to give her away.
Logged
looneytunes
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2071


Wishin' I was Fishin'
« Reply #21 on: June 09, 2011, 11:13:32 AM »
BB...I'm sure hoping good news keeps on coming.  Am also sending you a PM.   :cuddle;
Logged
"The key to being patient is having something to do in the meantime" AU
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325
« Reply #22 on: June 09, 2011, 11:16:12 AM »
OK, so that's a little bit of progress.  It's often helpful to know what is NOT the problem.  But it all takes so much time to arrange for tests and what not, but in the meantime, hubby is still suffering.  What happens next, billybags?
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
billybags
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2190
« Reply #23 on: June 10, 2011, 08:54:35 AM »
Next we are off to have a neuro test where they stick pins in your muscles and I have told them he will not stop taking the blood thinner a gain, I do not want to end up in A & E with chest pains again, whether they will still do it I don't know. Can not get to see the cardiologist for weeks.
Logged
lmunchkin
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2471

"There Is No Place Like Home!"
« Reply #24 on: June 10, 2011, 06:11:45 PM »
BB, girl you have been through it!  We just keep worring all the time for them, God, it never seems to End! Just hang in there with him.  Praying for you both! 

lmunchkin     :flower;
Logged
11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Pages: [1] Go Up Print 
« previous next »
 
Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!