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Author Topic: I, I am a newbie,  (Read 2040 times)
buena
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« on: June 05, 2011, 03:09:47 PM »
Hi,I live in texas with my family. My husband has been on dialysis for the past 2 years. He traveled a long road of failing kidneys to get here.Never dreamt where the road was leading.My heart goes out to all those on dialysis. The rest of the world has no idea how hard it is. I will never pass by a dialysis center again without thinking about those within with respect.
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WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12
« Reply #1 on: June 05, 2011, 03:21:48 PM »
 :welcomesign;  Glad you found us!
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boswife
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us and fam easter 2013
« Reply #2 on: June 05, 2011, 05:33:15 PM »
 :welcomesign; and it's amazing isnt it.......how many times many of us have passed a 'unit/center' and never batted an eye.  What an amazing different world is in those places.  Lots of precious lives, dealing as best they can...   welcome to our little comfort zone, I hope you feel comfortable here and share some of your own experiences.  I am carepartner to my hubby who is on D for a couple of years, and now home with nxStage Since january of this year. 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: June 05, 2011, 06:31:55 PM »
Hi, Buena!

 :welcomesign;

Dialysis is a bummer, but I'm sure glad my husband has had that option!  :2thumbsup;

Lots of support here!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
galvo
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« Reply #4 on: June 05, 2011, 07:59:28 PM »
G'day, buena, and  :welcomesign;.  :ausflag;
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Galvo
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« Reply #5 on: June 06, 2011, 07:15:19 AM »
 :welcomesign; buena!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
looneytunes
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Wishin' I was Fishin'
« Reply #6 on: June 06, 2011, 03:29:38 PM »
Ola Buena!  Glad you joined us.   :welcomesign;
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"The key to being patient is having something to do in the meantime" AU
lmunchkin
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"There Is No Place Like Home!"
« Reply #7 on: June 06, 2011, 07:54:38 PM »
Welcome Buena!  D. is definately an "Eye Opener". I have been caregiver to my husband also!  We are doing Home Hemo with Nxstage. D. is not fun, but it is not the end of the world either!

You post as often as you want.  They have a section for Caregivers also!  You might find some info there that you can use!
Again,     :welcomesign;

lmunchkin    :flower;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Rerun
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Going through life tied to a chair!
« Reply #8 on: June 07, 2011, 04:32:01 PM »
Hi Buena.  It helps to hear someone who is not on dialysis recognizes that it is a tough road.  It is sad to say but I'd rather have the healthy respect for me of doing this day after damn day then for someone to discount it as "no big deal".  Them are fight'en words.

I hope you find the support you need here.  Talk your husband into checking out this site.  He could learn a thing or two.

Glad you found us.

Rerun, Moderator      :welcomesign;
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