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Author Topic: BK Virus  (Read 4663 times)
Laurie
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May 13, 2008
« on: March 06, 2010, 01:45:37 PM »
I had a biopsy on Wednesday because my creatinine has been fluctuating. It was determined that I have the BK Virus. My doctor is still trying to figure out how he wants to treat it. One thing he is considering is to have me stop Cellcept and let my immune system try to fight off the virus on it's own, but that increases my risk for rejection. I'm just curious if anyone has been treated for it and what was done.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
kellyt
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« Reply #1 on: March 06, 2010, 02:05:57 PM »
I haven't had the BK virus, but I was taken off Cellcept from about August 09 until just a few weeks ago due to that lymphocele problem I had.  I did fine.  I hope you get it all worked out.   :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Laurie
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May 13, 2008
« Reply #2 on: March 09, 2010, 06:36:15 PM »
Thanks Kelly! They decided to have me cut my Cellcept dose in half and see if that will be enough to get rid of the virus. I had a case of rejection right after my transplant so they are not wanting to stop the Cellcept completely.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Wallyz
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« Reply #3 on: March 09, 2010, 08:13:33 PM »
BK isn't that problematic, it's a marker for the overall health of your immune system.  Good luck, and enjoy lower doses of immunosuppressants.
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kellyt
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« Reply #4 on: March 09, 2010, 08:15:52 PM »
I'd be terrified to stop any medication if I had had a rejection episode!  I hope it works for you.  I know Cellcept can slow healing time.  Good Luck!!   :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Wattle
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« Reply #5 on: March 10, 2010, 11:02:02 PM »
 :boxing;  Well that is just annoying Laurie!    :boxing; :boxing;

What was your stabilized dose of Cellcept and what have they cut it too? What other Immunosuppressants are you on?

It probably also depends on the match of your kidney. The better the match the lower the doses of Immunosuppressants used.

I hope it "high tails it" out of your kidney very soon!


 :cuddle; :cuddle; :cuddle; :cuddle; :cuddle;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Laurie
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May 13, 2008
« Reply #6 on: March 17, 2010, 06:04:27 AM »
Sally ~ My normal dose of Cellcept is 1000 mg twice a day so they have cut it to 500 mg twice a day. I'm also on 2 mg Prograf twice a day and 5 mg Prednisone. I go back for labs and clinic this Friday.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Phraxis
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« Reply #7 on: March 23, 2010, 11:13:31 PM »
I developed higher levels of BK four months ago. They did a Cellcept level test (high levels reduce the immune system allowing Bk to flourish) and reduced Cellcept. I am now at 500 mg twice a day and BK has all but disappeared, having steadily dropped.

BK seems to be one of those nuisance things (tho it can lead to rejection) that is monitored and seems be easy for your immune system to tackle. So it is that effort to keeping range of immune suppression that appears to control BK.
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TINA HUBB
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« Reply #8 on: June 04, 2011, 06:50:15 AM »
Hi Laurie
I am new to this site and came across your post about BK Virus from last year. Wondering if it cleared up or if you are still having a problem. My daughter is battling BK and had some info for you but maybe you might have some for me.
Thanks
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Mother to 7yr old with VATER
Failed transplant at 13 mths of age
On dialysis for @ 5 yrs
Successful transplant at age 6
One of the happiest days of our life!
Chris
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« Reply #9 on: June 04, 2011, 12:11:56 PM »
I will have to look for post, but another member just posted within two weeks that he has the BK virus and wanted to know if anyone else had it and how the recovery went.
 
Ahh, just checked emails, it was bountyhunter ga at http://ihatedialysis.com/forum/index.php?topic=23198.new;topicseen#new
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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« Reply #10 on: June 05, 2011, 12:47:55 AM »
Another member who has dealt with the BK virus, Jie, http://ihatedialysis.com/forum/index.php?topic=23160.new;topicseen#new
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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