I just finished calling our transplant center for the 3rd time in 2 days. When D was in the hospital the 1st time this month I was able to get ahold of her and see what was holding up the process since we hadn't heard a word from her. EVER. She told me she was just waiting on the second blood type test to be done and the results to be faxed to her. She said that that was all she needed and then his case would be presented to the panel and he would be listed. BTW: he is going for dual transplant kidney/pancreas.
I got off the phone, walked into the hospital, and had 1 conversation. The test was completed that day and the results faxed to her the following day along with a message from me on her voicemail to please let me know if she didn't receive the results. That was almost 3 weeks ago. I still have not heard a word. And since then, we have had another 5 day hospital stay.
When we first met out coordinator it was "Oh I will be in constant contact, you will probably get tired of hearing from me" BLAH BLAH BLAH
Like I said earlier, she has not initiated contact with us ONE TIME since this whole process has started. And she has only actually spoken to one of us on the phone twice (we called both times)
You know it's bad when the receptionist says "And this is the 3rd message you have left for her" and recites your own phone number back to you.
I would really like to let the coordinator know just exactly I think of her and her job skills. But I know that would not be wise....
It would sure make me feel better though. At least for awhile.