finally back on PD

[Red from Canada]

Hi Everyone! I haven't been on for quite a while. I had peritonitis at New Years and they found a mass in my abdomen. pre cancerous growths in my bowel.  surgery to remove one third of my colon. They had to remove my PD tube. Two months on hospital and finally had new tube put in(my fourth) and now I am getting negative UFs. Has anyone had this problem? We were booked on a trip for S
eptember, but if I can't get any fluid off, we are doomed!  A
ny advice or encouragement?

[okarol]

Wow - I don't have any experience with PD but am happy to see you posting and I hope you get good results soon!

[Red from Canada]

Thanks Karol, I have just returned from my doctor and they say I have to go back on Hemo permanently.  my peritoneum either is worn out or too much scar tissue has built up........so this is my last post in this section I guess.  I go back on in center Hemo as of tomorrow night.  See you in the general section!

[mcclane]

best wishes !

I just went thru something similiar last year.  We had a cruise booked in october, but in apr may i was told i had to go back on pd.  It was a race with the hospital (to get the pd catheter in, get everything all setup again), and then another race to get trained on the cycler, all before we left for the cruise.

like yourself, april of this year they told me my peritoneal membrane was shot, and hemo was the only option.  hemo has its own set of challenges, on the plus side, when they said more liberal diet, they mean it.  I can almost eat whatever i want now.

[billybags]

Red I am so sorry to hear this.it sounds like you have been through the wringer. My husband has been on Pd for 3 years and he was told last week that he would not be able to go on hemo again because of his heart. I hold my breath that he does not get peritonitis again and that his peritoneal lasts out for a lot  longer.